our_rarelife

our_rarelife has been a member of Linktree for 2 years and joined in June 2024. Resources ourrarelife has populated their site with include: • Sign the Petition - Campaign for Change in Genetic Testing in Postmortems of Young People • PPA2: Rare Genetic Conditions - Danielle Green's Story • Extremely rare disease causes sudden death of WA siblings • MEDIA Our Story - Yahoo • Danielle’s Story - Rare Voices Australia • Mito Stories Project - Your story can drive change • Mighty heart - Airlie & Sonny’s Story • rarevoices. - mental health and wellbeing resources • Peak body for Australians with rare diseases including genetic disorders • Garvan Institute of Medical Research • Red Nose Research • HeartKids • Harry Perkins Institute - Perkins Magazine issue 3, 2016 • Mito Foundation - Hope for mitochondrial disease • Lumi Health – Genetic Carrier Screening & Gene Testing • PPA2-associated sudden cardiac death: extending the clinical and allelic spectrum in 20 new families - Genetics in Medicine • Faulty gene linked to baby deaths • PPA2 gene mutation private support group - Facebook • What we’re doing about rare diseases • pathwest.health.wa.gov.au • Raising Awareness: Madison’s Story - SADS Foundation • Jeans for Genes • 13 Things ER Staff Should Know About People With Rare Diseases • Facebook - Our Rare Life • Business with a Heart