Muscular Dystrophy Association

Muscular Dystrophy Association has been a member of Linktree for 1 year and joined in April 2025. The social media accounts linked to from Muscular Dystrophy Association are: • Facebook • Instagram • TikTok • Threads Besides social media accounts, mdasocial has populated their site with: • MDA Quest Media Product Guide • Books to Add to Your Summer Reading List: Spotlight on Community Authors - Quest | Muscular Dystrophy Association • The Part I Let Belong: Learning to Embrace My Disability Identity • MDA Engage Community Seminar with Penn State Health Milton S. Hershey Medical Center | Muscular Dystrophy Association • MDA’s Guide to the Rehabilitation Act of 1973 • Updates in Myofibrillar Myopathies (MFMs) • MDA’s Guide to the Affordable Care Act (ACA) • Episode 63- Family Caregiving, Policy, and the Power of Showing Up • Five Things You’ll Find at MDA Engage • Your support helps make summer camp possible! • Life with Lily: My Favorite Accessible Fashion & Beauty Tips - Quest | Muscular Dystrophy Association • DOJ Memo Threatens the Right of People with Disabilities to Live in Their Communities | Muscular Dystrophy Association • Sign Up for MDA Summer Camp! • Lessons in Life and Fatherhood • MDA Celebrates Reintroduction of the Air Carrier Access Amendments Act | Muscular Dystrophy Association • Tell Congress: Reauthorize the ACT for ALS! • Volunteer at MDA Summer Camp • $756,800 Raised at 41st Annual CITGO Lake Charles Refinery Golf Classic to Benefit the Muscular Dystrophy Association | Muscular Dystrophy Association • Quest Podcast Episode 62- From Roadmap to Emmy: Samuel and Dan Habib on Filmmaking, Family, and Disability • MDA’s Durable Medical Equipment Grant Program • About Neuromuscular Diseases • MDA Resource Center • MDA Joins Forces to Protect NIH Funding • Quest Podcast- The People Behind the People: Family Caregiving, Policy, and the Power of Showing Up • A Myasthenia Gravis Voyage of Twists, Turns, and Discoveries • Introduction to Morimoto-Ryu-Malicdan Neuromuscular Syndrome (RFC4 deficiency) • Support the Fight Against ALS - Donate Today • MDA Expands 2026 Engage Symposium Series, Bringing the Neuromuscular Community Together in Four U.S. Cities | Muscular Dystrophy Association • Accessible Birding: An Inclusive Window to Nature and Wildlife • Dutch Bros Community Reaches $20 Million in Total Lifetime Donations to Muscular Dystrophy Association During 19th Annual Drink One For Dane Day of Giving | Muscular Dystrophy Association • BEED 2026 Pre-registration Form - Becker Education & Engagement • Critical ALS Legislation You Need to Know About • Episode 59 – Redesigning the Day: Accessibility and Mindset Life Hacks with Jax Cowles - Quest | Muscular Dystrophy Association • MDA Ambassador Guest Blog: How to Find Community for Young People Living with Debilitating Diseases - Quest | Muscular Dystrophy Association • Episode 61- Pizazz, Purpose, and Periodic Paralysis: How Cienna Ditri Turns Lived Experience into Advocacy - Quest | Muscular Dystrophy Association • Urge Congress to Support Robust Medical Research Funding • MDA Summer Retail Campaign • Embers of Resilience Through Depression • Join MDA's MOVR 2.0 Pilot • Maintaining Pulmonary Function with ALS • MDA Durable Medical Equipment Grant Program • Honoring a Legacy: Dutch Bros® Annual Drink One For Dane® Day of Giving Returns to Raise ALS Awareness | Muscular Dystrophy Association • The Joy (and Lessons) of Motherhood • When “No Options” Starts to Change: A New Chapter for Seronegative Myasthenia Gravis - Quest | Muscular Dystrophy Association • FDA Expands Approval of VYVGART and VYVGART Hytrulo to All Adults Living with Generalized Myasthenia Gravis | Muscular Dystrophy Association • Introduction to CIAO1-Related Neuromuscular Disorder • ALS is Not the End of My Story • The Why Behind MDA’s Campaign to Support Family Caregivers - Quest | Muscular Dystrophy Association • Beyond Approval: Why Drug Development Doesn’t End at FDA Sign-Off - Quest | Muscular Dystrophy Association • Expert Advice for Preparing for Medical Emergencies with NMD • Comedian Fiona Cauley Shares Humor While Raising Disability Awareness - Quest | Muscular Dystrophy Association • Helen Paves Fund for Care and a Cure • Volunteer Spotlights: Stephen Furnary • Share Your Caregiving Story • MDA Marks ALS Awareness Month throughout May with Breakthrough Research, Powerful Stories, and Nationwide Call to Action to End ALS • Urge Congress to Support Family Caregivers • What Is a VUS? Variants of Unknown Significance in Genetic Testing and Why They Matter - Quest | Muscular Dystrophy Association • What is NMD? • How MDA Summer Camp Influenced the Direction of My Life - Quest | Muscular Dystrophy Association • IAFF Fire Fighters Gear Up for 39th Trans-New Hampshire Bike Ride Benefiting Muscular Dystrophy Association | Muscular Dystrophy Association • 2026 MDA Wings Over Wall Street Gala to Honor Tim Green, Dr. Merit Cudkowicz, and IEX Exchange in the Fight to End ALS | Muscular Dystrophy Association • Quest Podcast - Fashion for Every Body: Izzy Camilleri on Style, Function, and Inclusion • Retailers Partner with MDA to Send Kids to Summer Camp • My Pompe Journey • Pompe Disease and the Real Story Behind John Crowley, Dr. Stonehill, and ‘Extraordinary Measures’ • How I Use My Voice by Volunteering – and Why You Should Too • Leading ALS Organizations Celebrate Introduction of ACT for ALS Reauthorization Act: Call for Swift Congressional Passage | Muscular Dystrophy Association • Volunteer Spotlights • Rurally Complicated • Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) • Puerto Rico volunteers bring decades of dedication to MDA • A Decade of Strength: Muscular Dystrophy Association and Burn Boot Camp Team Up for 10th Annual ‘Be Their Muscle’ Campaign | Muscular Dystrophy Association • Letter from the Editor: How New Higher-Dose Regimen for Spinraza Brings More Hope - Quest | Muscular Dystrophy Association • Why an Expert Specialist is Crucial for Your Care • FDA Approves High Dose Regimen of SPINRAZA® for Spinal Muscular Atrophy, Reflecting Progress Made Possible Through Decades of MDA Supported Research | Muscular Dystrophy Association • Wildland Fire Fighter Refuses to Allow Diagnosis to Define His Life - Quest | Muscular Dystrophy Association • Join the National ALS Registry • How to Make Vocational Training Affordable • Help Shape the Future of MOVR: Join the MOVR 2.0 Pilot • Navigating a Busy Life with a Feeding Tube • VIDEO: MDA’s Community Advisory Task Force • MDA Shamrocks Retail Campaigns • Shop IZ Adaptive • Shop Silverts • Research Network Supports Limb-Girdle Muscular Dystrophy Treatment Development - Quest | Muscular Dystrophy Association • MDA Conference Highlights Breakthroughs in Neuromuscular Research, Innovative Therapies, and Patient Care • 2026 MDA Clinical & Scientific Conference Opening Highlights the Power of Collaboration - Quest | Muscular Dystrophy Association • Keynote Address John F Crowley on the Future of Biotech and Rare Disease Innovation • Redefining How I View Myself • MDA Awards Honors Those Driving Progress in Neuromuscular Research and Care - Quest | Muscular Dystrophy Association • Updates in X-Linked Myotubular Myopathy (XLMTM) • MDA Clinical & Scientific Conference • Innovations in Science • MDA College Scholarship Program • Rare Disease Day: Momentum in Neuromuscular Diseases is Building, but Progress Depends on Sustained Investment - Quest | Muscular Dystrophy Association • Explore MDA programs and support at every stage of life. • Muscular Dystrophy Association Welcomes Amanda Baze Hall to Board of Directors • 19th Annual MDA Night of Hope Gala: A Benefit for ALS Research • MDA Advocacy Institute: Spotlight on Family Caregiving • The Secret to Navigating Life with a Rare Disease? Say Yes. • Recent Updates with Section 504 • The Hidden Power of Self-Care in Caregiving - Quest | Muscular Dystrophy Association • Learn More About Amyotrophic Lateral Sclerosis (ALS) • Everything You Need to Know About the Upcoming 2026 MDA Clinical & Scientific Conference - Quest | Muscular Dystrophy Association • MDA Research: A Full-Spectrum Approach • Donate for a 2026 MDA Shamrocks T-shirt • Nationwide MDA Shamrocks Campaign Advances Independence for People Living with Rare Neuromuscular Conditions | Muscular Dystrophy Association • MDA Announces Łukasz Sznajder, PhD, MSc, to Receive Inaugural MDA Research Momentum Award | Muscular Dystrophy Association • Register for the 2026 MDA Clinical & Scientific Conference • Brad Dusek and the National ALS Registry: Taking on ALS • Grateful for the One by My Side on Valentine’s Day (and Every Day) - Quest | Muscular Dystrophy Association • International Day of Women and Girls in Science: MDA Spotlight on Elizabeth Madole - Quest | Muscular Dystrophy Association • MDA Atlanta Night of Hope Gala to Honor ALS Advocate Justin Upchurch with Steve Ennis Hope Award | Muscular Dystrophy Association • 2026 Night of Hope by Muscular Dystrophy Association • Pursuing My Dreams While Living with a Rare Disease • Understanding Myotonia Congenita • MDA Supports National Launch of Champion Insights Study to Investigate ALS Risk in Fire Fighters and Other High-Performance Populations • Bipartisan Congressional Action Advances Critical Programs for Rare Neuromuscular Disease Research and Care • Making the Impossible Possible: One Man’s Journey on the Camino de Santiago de Compostela - Quest | Muscular Dystrophy Association • Contact your U.S. Representative and ask them to support key MDA priorities. • What’s Ahead for Your 2026 National Ambassador - Quest | Muscular Dystrophy Association • Organizations Join Forces to Map How Human Muscle Regenerates • MDA Marks Rare Disease Day by Spotlighting Community Stories Driving Progress in Research, Care, and Advocacy • MDA Advocacy Institute: 2026 Advocacy Year Ahead • Adapting and Prioritizing a Healthy Lifestyle as I Age • Urge Congress to Pass Package of MDA Priorities • MDA Announces 2026 National Ambassador Lily Sander Following Landmark Years of National Advocacy | Muscular Dystrophy Association • Support NIH • National ALS Registry • Join the MOVR 2.0 Pilot | MDA • Share Your Caregiving Stories • MDA’s Legacy Awards Honor Innovators in Clinical and Scientific Research, and Community Impact at the 2026 MDA Clinical & Scientific Conference in March • Collective Advocacy at the MDA Clinical & Scientific Conference Propels Hope and Possibility - Quest | Muscular Dystrophy Association • How to Choose a College with a Disability • MDA Invites Applications for 2026 College Scholarships • Inflammatory Myopathies • Reflecting on 2025’s Advocacy Accomplishments - Quest | Muscular Dystrophy Association • Steps of Strength: Finding Hope and Community on Our Duchenne Journey • Applications Now Open for MDA’s 2026 Summer Camp Season | Muscular Dystrophy Association • Apply for MDA Summer Camp • Simply Stated: Understanding Idiopathic Inflammatory Myopathies - Quest | Muscular Dystrophy Association • Everything You Need to Know About Clinical Trials for Neuromuscular Diseases - Quest | Muscular Dystrophy Association • 2025 MDA Quest Photo Contest Winners • A Shift in Perspective: Person-First Language and Identity-First Language - Quest | Muscular Dystrophy Association • A Year Built Together: Reflections on 2025 and the Road Ahead - Quest | Muscular Dystrophy Association • Navigating College Scholarships and Financial Assistance with a Disability - Quest | Muscular Dystrophy Association • Joining the National ALS Registry • Natural History Study of Individuals with Cardiomyopathy Associated with FRDA • Insights by Ira: Mission Complete • Holiday Gift Wrapping Made Easier: Accessible Tips & Tricks - Quest | Muscular Dystrophy Association • Holiday Product Guide • Learn More About Mitochondrial diseases • FDA Approves Amgen’s UPLIZNA® (inebilizumab-cdon) for Generalized Myasthenia Gravis (gMG), Expanding Treatment Options for Patients Living with Autoimmune Neuromuscular Disease | Muscular Dystrophy Association • MDA Announces More Than $2.7 Million For Research Grants • MDA Updates on Air Travel Advocacy - Quest | Muscular Dystrophy Association • Episode 58- Wrapping Up 2025 with Ira and Lily - Quest | Muscular Dystrophy Association • John F. Crowley to Deliver Keynote Address at the 2026 MDA Clinical & Scientific Conference • Updates in Primary Mitochondrial Diseases • Community Voices: Finding Connection in the Shared Language of Living with a Disability - Quest | Muscular Dystrophy Association • MDA Announces nearly $2 Million in Collaborative Research Grants Advancing Treatments Across Multiple Neuromuscular Diseases • In Honor of His Mother Helen, Beauty Expert Ken Paves Partners with the Muscular Dystrophy Association to Raise $5 Million for ALS Fund | Muscular Dystrophy Association • Letters from Lily: Advice for Parents of Children with Neuromuscular Disease • Tis the Season for Holiday Hacks and Tips • MDA Mentorship Programs • 5 Things Advocates Should Know: The Alleviating Barriers for Caregivers Act - Quest | Muscular Dystrophy Association • WEBINAR: Vocational Training and Employment Assistance • MDA ALS PSA – Answering the Call – Ken Sutcliffe • MDA Calls FDA Approval of Novartis’ Itvisma (onasemnogene abeparvovec-brve) a Major Step Forward for the Spinal Muscular Atrophy Community | Muscular Dystrophy Association • How Finding Community Helped Me Face the Fear of Having My Son Tested for CMT • Quick Guide: Understanding Programs and Benefits for People with Disabilities - Quest | Muscular Dystrophy Association • NFL Players Lace Up for Muscular Dystrophy Association’s Mission in 2025 ‘My Cause My Cleats’ Campaign for Giving Tuesday | Muscular Dystrophy Association • Exoskeletons Improve Movement for Those with Neuromuscular Diseases - Quest | Muscular Dystrophy Association • MDA Ambassador Guest Blog: My Journey to Gratitude is Paved with Acceptance and Advocacy - Quest | Muscular Dystrophy Association • Register: 2026 MDA Clinical & Scientific Conference • Updates in Neuropathy Ataxia and Retinitis Pigmentosa (NARP) Syndrome • Learn More About Myasthenia Gravis (MG) • Books to Add to Your Holiday Shopping List • What to Know About Changes to Food Assistance through SNAP - Quest | Muscular Dystrophy Association • MDA Advocacy: Make a Difference Today • How Expanded Access and Compassionate Use Broaden Access to Investigational Therapies - Quest | Muscular Dystrophy Association • FDA Approves KYGEVVI® (doxecitine and doxribtimine), the First and Only Treatment for Adults and Children Living with Thymidine Kinase 2 deficiency (TK2d), a Rare and Devastating Mitochondrial Disease | Muscular Dystrophy Association • MDA Honors National Family Caregivers Month with Advocacy and Awareness Nationwide • Protect NIH research funding • ABC Act: simplify administrative processes for family caregivers • Reauthorize Enhanced ACA Premium Tax Credits • Cooking with a Disability? Yes, Chef! • Register or Donate to the Dallas Muscle Walk • Become a Mentor. Make a Lasting Impact. Share your experience. Inspire what’s next. • 2025 MDA Let’s Play Scarefest • MDA Advocates to Congress on November 4 • MDA Launches Holiday Retail Campaign in Thousands of Retail Locations Nationwide • Izzy Camilleri Merges High Fashion and Adaptive Clothing Design • Why I am Speaking Up for Our Community at MDA Hill Day • How Adaptive Sports Changed My Life • Agenda Announced for 2026 MDA Clinical & Scientific Conference • Building a More Accessible Future from the Inside Out • Simply Stated: Updates in Facioscapulohumeral muscular dystrophy (FSHD) - Quest | Muscular Dystrophy Association • Tips for Accessible Halloween Costumes • Life Lessons on My Journey with Becker Muscular Dystrophy • Updates in Research and Care: Vaccines and Neuromuscular Conditions: Safety, Science, and Guidance | Muscular Dystrophy Association • #MDAstrong: Define What Strength Means to You • Insights by Ira: From Telethons to Treatments - Decades of Impact - Quest | Muscular Dystrophy Association • MDA Summer Camp Alumni Put the Power in Powerhockey - Quest | Muscular Dystrophy Association • Join MDA's 75th Anniversary: Advocate, Support, and Transform Lives • Better All the Time: Fighting Against Bitterness • MDA Engage Cultivate Connection • What #MDAstrong Means to Me • Updates in Research and Care: Finding the Right Care | Muscular Dystrophy Association • National ALS Registry 2025 Annual Meeting • Tell Congress: No cuts to #NIH! • The Unequivocal Power of Using Your Voice • Product Guide - Quest | Muscular Dystrophy Association • Life Lessons from My Service Dog (and Best Friend) • Register for MDA Engage - Stanford • Learn more about MDA research • Service Dogs, Inc. – Paws with a Purpose • MDA Advocacy Institute: Support for Medical Research Funding • Updates in Newborn Screening Legislation • MDA Let's Play: Schedule, Play, Watch, and Join Game Night • Head Back-to-School in Style with Adaptive Fashion - Quest | Muscular Dystrophy Association • Raise your voice. Be an advocate • Spotlight On: Charcot-Marie-Tooth disease (CMT) series • Five Common Corticosteroid Questions and Considerations - Quest | Muscular Dystrophy Association • MDA Ambassador Guest Blog: Someone Like Me • Read a Book Day: Spotlight on Community Authors • Updates in Charcot-Marie-Tooth Disease (CMT) • Elite Para-Dressage Athlete is Ready to Ride to Victory - Quest | Muscular Dystrophy Association • Find a MDA Summer Retailer Near You • The Right to Access My Education Fully • MDA Muscle Walk • 2025 IAFF Fill the Boot • MDA Launches #MDAstrong Campaign in September During Historic 75th Anniversary, Kicking Off on Labor Day Weekend • Donate to KSDK's Show of Strength • Your Gift Fuels Progress for Today and Tomorrow • Muscular Dystrophy Association and Parent Project Muscular Dystrophy Announce Joint Consensus Guidelines for Safe and Equitable Delivery of Gene Therapy in Duchenne Muscular Dystrophy | Muscular Dystrophy Association • Ten Tips for High School Life with a Disability • Explore the Future of SMA Care. Join Us Virtually! • Behind the Drug: Nusinersen (Spinraza) for SMA • Quest Media 2025 Photo Contest Survey • Behind the Drug: Risdiplam (Evrysdi) for SMA • Add Duchenne Muscular Dystrophy to National Newborn Screening List • Register for MDA Engage - Dallas • Built to Rise - Strength Forged Through Every Challenge • What You Should Know About Spinal Muscular Atrophy (SMA) • 2025 MDA College Scholarship Recipients Announced • Why We Decided to Name MDA in Our Will • Becker Education & Engagement • Updates on Friedreich's Ataxia (FRDA) • Tips for Flying with Power Wheelchairs and Medical Equipment • Registration Now Open for the 2026 MDA Clinical & Scientific Conference • Support MDA Summer Camp • Parenting, LGMD, and Choosing Joy • National Amyotrophic Lateral Sclerosis (ALS) Registry • The Joy of Accessible Sailing • Podcast Episode 55- Unpacking Disability Pride: Voices from the MDA Community • Subscribe to Quest Media • Join us in making a difference: Donate today • MDA Summer Retail Campaigns • Understanding MDA Advocacy’s Education Policy Efforts - Quest | Muscular Dystrophy Association • MDA Daily Living: Living a Full Life | Muscular Dystrophy Association • Next Steps Seminar: Newly Diagnosed ALS (Virtual) • MDA Advocacy Institute: Medicaid and the Path Forward • Clinical Research Alert: Phase 3 Study of RGX-202 in Boys with DMD • Simply Stated: MG Therapeutic Landscape - Quest | Muscular Dystrophy Association • Congress Finalizes Historic Cuts to Care; MDA Pledges to Defend Community • Find Accessible Beaches for Summer Fun • Support the MDA Summer Camp Retail Campaign • Senate Passes Deeper Cuts to Care; MDA Urges House to Reject Bill | Muscular Dystrophy Association • Say NO to Medicaid Cuts • MDA Ambassador Guest Blog: Finding Passion & Purpose in Art - Quest | Muscular Dystrophy Association • Muscular Dystrophy Association and Friedreich’s Ataxia Research Alliance Announce New Collaborative Grant to Study Cardiac Fibrosis in Friedreich’s Ataxia | Muscular Dystrophy Association • Insights by Ira: Let’s Get Active This Summer! - Quest | Muscular Dystrophy Association • Rawlings® limited-edition 'End ALS with MDA' baseball • MDA Opens Registration for the 2025 Family Engage Symposium in Dallas, Texas • MDA Ambassador Guest Blog: How Making an Impact Renewed My Purpose After FSHD Diagnosis - Quest | Muscular Dystrophy Association • Impact of the One Big Beautiful Bill Act on the Neuromuscular Disease Community • The Joys (and Lessons) of Fatherhood from MDA Ambassadors - Quest • Daily Living: Navigating Hospital Stays • My Father’s Journey with ALS • How My MG Journey Has Shaped Who I Am Today • Join the Movement: Donate, Advocate, and Participate • MDA Research & Care Webinar: Mitochondrial Myopathy • Dallas child receives Godzilla-themed wheelchair costume • MDA Summer Camp • World Collagen 6 Awareness Day • MDA Webinar: Understanding Clinical Trials and Natural History Studies | Muscular Dystrophy Association • Your Signature = $5 Today | Muscular Dystrophy Association • How to Plan the Perfect Summer Staycation - Quest | Muscular Dystrophy Association • 'I'm not quitting': NYC trailblazer Dan Doctoroff opens up about fight against ALS, search for cure • Donate, sponsor, or buy a ticket to support Wings Over Wall Street in New York City • NIH Cuts - Statement • Subscribe to MDA Quest Media • Guide for Caregivers • Gene Therapy Community Support • Become a Volunteer • Advocate with Us • Quest Podcast - Listen • MDA Let's Play Twitch • MDA Calendar of Events • Like us on Facebook • Follow us on X • Follow us on Threads • Follow us on TikTok • Muscular Dystrophy Association