@ipwso

ipwso has been a member of Linktree for 5 years and joined in December 2020. The social media accounts linked to from ipwso are: • Facebook • Instagram • YouTube • LinkedIn • Email • X Besides social media accounts, ipwso has populated their site with: • Support for Conferences and Workshops - IPWSO • Body weight, behaviours of concern, and social contact in adults and adolescents with Prader-Willi syndrome in full-time care services: Findings from pooled international archival data - Orphanet Journal of Rare Diseases • Caregivers' Conference 2024 • Supporting caregivers and people with Prader-Willi syndrome • Asociación Prader Willi Costa Rica • Our Strategic Plan 2024-2026 • PWS Guides for Doctors • Translated Guides - IPWSO • Free Diagnosis for PWS • Skin picking - IPWSO • Sign up to our newsletter - IPWSO • Flourishing at 40 - Andrea's story • Be a star for IPWSO! Donate today! • Apply for funding for PWS events in 2024 • Apply for funding for PWS projects in 2024 • PWS research papers • Preparing for the future: when parents die • PWS conference India - 16 December • Family Meeting about siblings - 25 November • Research and Clinical Trials Update Meetings - IPWSO • Caregivers Conference: Expression of interest survey • El 3er. Simposio Internacional de Síndrome de Prader-Willi • After the Diagnosis, Relief and Acceptance • PWS awareness month 2023 • Our annual report 2022 • Summit Meeting on restrictions and risk • Ramadan and PWS • ALERTAS MÉDICOS SÍNDROME DE PRADER-WILLI • Medical Alerts for Prader-Willi syndrome • Family Zoom meeting on managing challenging behaviour • Find out more about joining the Mental Health ECHO® • Videos about Prader-Willi syndrome • Gastrointestinal issues in Prader-Willi syndrome • Managing obesity in PWS • Photo consent form • Funding opportunities • Exercise for people with Prader-Willi syndrome • PWS Associations around the world • Donate to our fundraiser! • PWS information on YouTube • PWS Information • Raising a child with PWS • Impact of Project ECHO • New PWS videos • PWS videos in Arabic • Translated guides • Research Papers - PWS • PWS Malaysia video • Gina talks about her relationship with brother Ashley who has PWS. • Share your story • IPWSO conference 2022 booklets • Information about PWS • Key PWS medical facts for your doctor • Interdisciplinary PWS conference • IPWSO conference 2022 • Support our work this PWS awareness month • Endocrine issues in PWS • IPWSO research • Films about care and support options for adults with PWS • What is Prader-Willi syndrome? • When to test for Prader-Willi syndrome • Motivating someone with PWS • PWS China • Information for families • Research into COVID and PWS • Rare Disease Day 2022 • PWS and coping with change • Lunar New Year, translations in Chinese • I want the same! • Summit meeting on Newborn Screening for PWS • 30 Years of IPWSO: looking back, looking forward • Donate to IPWSO • PWS in Africa • Gina talks about her sibling relationship with Ashley • Rare Revolution article on PWS & ECHO • Mental health and behaviour • Sponsor Agnes to run the Cambridge half-marathon! • Find out about becoming an IPWSO Trustee • Dr Suzanne Cassidy Video • APPWS Conference 2021 • 30th Anniversary Video • Diet and nutrition in PWS • PWS and hypogonadism • The importance of planned purposeful days • Free PWS diagnosis • Information for new parents • IPWSO's ECHO® programme • IPWSO’s leaflet • 11th International Prader-Willi Syndrome Organisation Conference 2022 • Confabulation • Common behaviours in Prader-Willi syndrome • The IPWSO Caregivers’ ECHO® • PWS research and resources • IPWSO at 30 YouTube • #Resolution4rare • Conference registration • IPWSO newsletter • Diagnosis Campaign Donation • Country members of IPWSO • The reality of life with PWS, one family’s story • When to test for PWS • Ramadan, Fasting and PWS • Support for Conferences and Workshops • Diagnosing Prader-Willi syndrome • Endocrinology of PWS • Sex hormones, fertility and sexuality in Prader-Willi syndrome • Celebrating the lives of people with PWS this Rare Disease Day • Use of Growth Hormone in Georgia • Orphanet Journal of Rare Diseases - Growth Hormone Treatment • Kate’s Story • A Guide to the Transitional Years • Covid-19 Survey • “Building a future for our son with Prader-Willi syndrome” • 2020-2023 Strategic Plan • Navigating the World of Rare Diseases