@erdheim_chester
ECD Global Alliance, serving the Erdheim-Chester Disease Community since 2009.
End-of-Year Match Campaign for the ECD Global Alliance
End-of-Year Match Campaign for the ECD Global Alliance
Our Website
Our Website
Coming together as a community. ECD Global Alliance - Providing Support! Make a difference! Join the movement and bring breakthroughs. Learn about Care Cent ...
ECD Patient & Family Gatherings
ECD Patient & Family Gatherings
Prior Patient & Family Gatherings
Our Blog
Our Blog
Facing the Future With Hope by Barry Atnip
Facing the Future With Hope by Barry Atnip
The Importance of Early Detection
The Importance of Early Detection
Dr. Gaurav Goyal, University of Alabama, Birmingham talks about the importance of detecting Erdheim-Chester disease in patients as early as possible. Awarene...
Donate
Donate
Register & View Webinars
Register & View Webinars
Upcoming Webinars & Recordings Please read our Virtual Participation Policy before joining an ECD Global Alliance webinar. To receive emails about these ...
Purchase ECD Awareness Gear
Purchase ECD Awareness Gear
Participate in ECD Support Squad, an apparel fundraiser event benefitting ECD Global Alliance Inc.. Learn how you can get involved here!
New Podcast | Connection between Diabetes Insipidus and Histiocytosis like ECD.
New Podcast | Connection between Diabetes Insipidus and Histiocytosis like ECD.
Today's podcast focuses on an opportunity to learn about a group of rare diseases that share a common condition with pituitary disease. Histiocytosis or histiocytic disorders are a group of rare diseases that occur when there is an overproduction of white blood cells known as histiocytes that can lead to organ damage and tumor formation. DI impacts almost 50% of Histiocytosis patients and 35% of pituitary patients.
Adam Green's Story
Adam Green's Story
ECD: World Health Organization Cancer Designation
ECD: World Health Organization Cancer Designation
Abstract. A revision of the nearly 8-year-old World Health Organization classification of the lymphoid neoplasms and the accompanying monograph is being pu
Hiba in Tunisia: A Patient Story
Hiba in Tunisia: A Patient Story
Hiba en Tunisia: Lire son histoire en français
Hiba en Tunisia: Lire son histoire en français
Request an ECD Brochure
Request an ECD Brochure
Social good software for nonprofits, corporations, public agencies, and more. Experience best-in-class technology that makes creating impact easier than ever.
Noah Barone's ECD Story
Noah Barone's ECD Story
Beyond The Diagnoses: Podcast On Spreading Awareness
Beyond The Diagnoses: Podcast On Spreading Awareness
Welcome to Episode 007 of the Beyond the Diagnosis Podcast. In this episode Kathy sits down with 4 very special guests for a panel discussion about the importance of raising awareness, what 3 different organizations are doing during Histiocytosis Awareness Month and how you can get involved. Let us know what you think! Leave us a review, drop us a comment or email Kathy directly at kw@histio.org. Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback! www.rarediseases.org https://erdheim-chester.org/ https://histiocytosis.ca/ https://histio.org/get-involved/raise-awareness/ Music: “Heroes” by Noah Smith
Become an ECD Global Alliance Champion
Become an ECD Global Alliance Champion
Why I Give Community Video
Why I Give Community Video
Community members join together to let you know why they are compelled to support the mission of the ECD Global Alliance, in order to serve Erdheim-Chester D...
@erdheim_chester Facebook
@erdheim_chester Facebook
@erdheim_chester Instagram
@erdheim_chester Instagram
@erdheim_chester YouTube
@erdheim_chester YouTube
@erdheim_chester LinkedIn
@erdheim_chester LinkedIn
@erdheim_chester Email
@erdheim_chester Email
@erdheim_chester Payment
@erdheim_chester Payment
@erdheim_chester X
@erdheim_chester X
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