CACNA1A Foundation

CACNA1A Foundation has been a member of Linktree for 5 years and joined in October 2020. Resources cacna1a has populated their site with include: • Missed the Conference? Purchase an Early Access Pass for the Recordings • IntraBio Webinar Registration - August 5th at 12PM ET • Clarify CACNA1A Blog — CACNA1A Foundation • Board and Leadership Team — CACNA1A Foundation • Clinical Trials — CACNA1A Foundation • Learn more about the CACNA1A Portal • CACNA1A Clinical Trials Perspectives Study • Submit CACNA1A Champion Smiles • WEBINAR: Participating in Clinical Research • Host a Fundraiser — CACNA1A Foundation • Meet NEW Board Member - Kyle MacLeod! • #RAREis Scholarship Fund • Sponsor the 2026 Creating Connections Community Conference • Visit the CACNA1A Foundation Website • The Fastest Path Forward - Science Strategy • You can make a difference TODAY. Click here to donate 💙💜 • Newsletter — Read the latest issue and join our mailing list! • Rare Awareness Radio - Community Resonance Foundation • Meet Ari - Your CACNA1A Health Companion (Citizen Health) • COMBI[O]MICS Study • COMBI[O]MICS Study - consult call • Meet the Experts | Global Research Network • CACNA1A Champion Stories — You Are Not Alone • Submit Your Champion's Story — CACNA1A Foundation • Submit your CACNA1A Champion Photos Today 📸 • IntraBio's Letter to the Community • IntraBio Receives Regulatory Authorization to Begin Pivotal Phase III Trial of Levacetylleucine in CACNA1A-Related Disorders Across Participating Regions • Read FDA patient listening session summary • 2025 Impact Report • Register for a Meet-up/Community Conversation Today -> • Global Ambassadors Program -> Learn more here! • CACNA1A Hemiplegic Migraine Resource Library • Clinician resources, information for doctors — CACNA1A Foundation • Join our Caring Hearts Monthly Giving Club 💜 • "NEW TO CACNA1A" Toolkit: Access here -> • CACNA1A Foundation Shop | Raise Awareness Through Your Closet • Global Ambassadors — CACNA1A Foundation • Ways to Give | Learn more here! • We're Hiring — CACNA1A Foundation • CACNA1A Foundation + Citizen Health | Register here! • Annual Ladders to Cures Event | Register Here • Miles for Maren 5K Team Featured in News Article -> Read Here • Seizure First Aid Training: Register here -> • New to CACNA1A Toolkit Zoom: June 17th -> Register Today • CACNA1A Patient, Parent & Caregiver Meetup -> Register Today • New to CACNA1A Toolkit Zoom: June 20th -> Register Today • (DEEs)/Severe Hemiplegic Migraine Meetup -> Register Today! • RSVP and Learn More about our CACNA1A Table Here -> • Bio International Convention: RSVP and Learn More Here -> • CACNA1A Parents Interviewed on Podcast! Listen Here -> • Meet our New Board Member and Director of Community Engagement: Casey Dawley! • SUNDAY -> DEE/HM MEETING: Register here! • Rare Awareness Radio: Dr. Fikri Birey • Virtual Monthly Meetup for CACNA1A Families (August 16th) • CACNA1A Family Featured on the Rarely Normal Podcast: Kristi & Stella Levine -> Listen here! • Rare Awareness Radio: Living on Both Sides of the Stethoscope — Dr. Deb Ondrasik on CACNA1A • National Ataxia Foundation's Virtual Coffee Chat (August 7th) • Global Seizure Study Includes CACNA1A: Are you eligible? • CACNA1A Receives an ICD-10 Code! Watch here -> • CACNA1A Kid's Art Contest: CACNA1A Kindness Cards • CACNA1A Gene Therapy: Podcast Interview with Dr. Samuel M. Young, Jr. • Rare Awareness Radio: Understanding CACNA1A with Kristin Baranano - Listen today! • Virtual Meet and Greet with our New Executive Director | Shira Johnson! Register here.. • Ataxia UK Resources • Join the Caring Hearts Giving Club—Make a Lasting Impact • Current Grants We're Funding -> Learn more! • Bid-For-A-Cure Treasure Hunters | Donate today! • CACNA1A Family Featured in the Tracy Press | Read here! • Welcome Brandon Farley! New Board Member. READ HERE -> • FREE Genetic Testing -> Access here! • SUDEP Awareness Day | Learn more here! • DAF Day | GIVE HERE -> • Partners Against Mortality in Epilepsy | SUDEP ACTION DAY • 2025 Bid-For-A-Cure! Learn more here -> • BID-FOR-A-CURE: Learn more here -> • 2025 CACNA1A Bid-For-A-Cure | BID HERE -> • Coffee Chat for Parents with Dr. Barañano. | April 3rd -> Register Here • CACNA1A Patient, Parent & Caregiver Meetup -> Register Here • Double Your Impact before the year ends to give our Champions Hope! • Learn more about the Ciitizen Rare Patient Network • Webinar Series — Intro to Genetics • Newsletter — CACNA1A Foundation • 2023 Impact Report Publication - Read Today! • Join our Million Dollar Bike Ride team! • SUDEP Action Day 2024 Toolkit • Meet our NEW Development Director! • Parent Survey • Submit your 2024 5K Photos here! • Submit your 2024 Conference Photos Here! • Learn more about the Rare Pediatric Disease Priority Review Vouchers • Creating Hope Reauthorization Act of 2024: Sign Here • Pampered Chef Fundraiser • Million Dollar Bike Ride 2024 Pilot Grant Program - LOI — Orphan Disease Center • Submit a Review to Help the CACNA1A Foundation be Recognized as a 2024 Great NonProfit! • Anthony "Tony" Giunta Obituary | July 16, 2024 | Leonard Memorial Funeral Home & Cremations - Glen Ellyn, IL • In Memory of Anthony Michael Giunta • Bid-For-A-Cure: Donate items here! • CACNA1A Bid-For-A-Cure: Pre-Event Auction (NY JETS VS. PATRIOTS) • Research Grant Awardees • NEW PARTNERSHIP - Free Genetic Testing! • Zoom Meeting for Coffee Chat with National Ataxia Foundation • The Importance of Signing Up for the Natural History Study + REGISTER • Upload your CACNA1A 5K Color Walk, Run or Ride Photos and Videos here! • UCB Epilepsy Survey • 2024 Conference Info: Click here! • Moms Fight For a Cure • #RareIs Horizon Grant Recipient Announcement • CACNA1A 2022 Conference Sessions • SHOP Rare Disease Day Apparel • Future of Health Summit 2023 • Push Science Forward by creating a Giving Tuesday and EOY Fundraising Page! • Seizure Action Plan Awareness Week: Access the toolkit here! • Register for Rare Disease Day 2024: Climbing Ladders to Cures in Rare Disease Research • 2023 End of Year Report - Blog Post • Register for NIH Rare Disease Day • Rare Disease Day Toolkit 2024 • Donate for CACNA1A Awareness Day here!