AHCF

AHCF has been a member of Linktree for 4 years and joined in July 2022. Resources ahcf has populated their site with include: • DONATE • AHCF Monthly Family Update • AHC Family Reference Guide • Supporting Jett & His Sisters • Aspartes Pharmaceuticals Announces FDA Orphan Drug and Rare Pediatric Disease Designations for ASP-001 for the Treatment of Alternating Hemiplegia of Childhood - BioSpace • Dr. DeBrosse Webinar Recording: Your Child's AHC Genetic Results • AHC Support Group • Alice Belgrade-Moss Webinar Recording - Changing the Channel: Behavior & AHC • AHCF Website • AHC Clinical Reference Guide • May Newsletter 2026 • AHCF Family Meeting 2027 – Bigger in Texas. Stronger Together. - AHCF • AHCF 2025 Impact Statement • Picture This! Campaign Submission Form • Dr. Mohamad Mikati's Published Study • Empowered Parenting: Thriving as a Single Parent Raising a Rare Disease Child • AHC Patient Priority Survey • Parenting Children With Special Needs | The SEN Parenting Journey | Family Round Table • AHCF Family Circle Zoom Link • AHCF Family Circle Text Reminder • Dr. Nutan Sharma: How Your AHC Data Drives Research and Improves Care • Recording - Heart 2 Heart Webinar with Dr Landstrom • New Leaders Join Children’s Hospital of Philadelphia Cardiovascular Institute, Advancing Pediatric Research and Cardiac Care | Children's Hospital of Philadelphia • LIVE WEBINAR, Protected Tomorrows’ 2026 Parent University™ • Hunter syndrome: Boy with rare condition amazes doctors after world-first gene therapy • Harvard chemist and molecular biologist David Liu invented gene editing tools that can correct and rewrite defective genes. His research could one day help hundreds of millions of people with genetic diseases, including sickle cell and muscular dystrophy. • MGH-Flyer-Wearables-for-AHC • My Toddlers Life with Dystonia - Dr. Mom • 2025 Summer General Family Newsletter • AHC Experience Survey - Family Meeting 2025 • AHC Experience Flyer - Family Meeting 2025 • IFAHC First Newsletter, July 1995 • AHC & the Heart Study • 2025 Spring General Family Newsletter • Winter Research Newsletter Jan 2025 • What Is Epilepsy? • Sleep, Triggers, Medications, and Headaches: Insight into the AHC Patient Experience • Researchers Awarded Department of Defense Grant to Study the Role of Gut Microbiomes to Improve Outcomes in Dystonia - UTHSC News • Virginia Tech scientist awarded grant to study a debilitating neurological disorder • Epilepsy Survey for AHC Parents • New Mouse Model Paper - Dr Al George • New Research Paper - Dr Andrew Landstrom (MAB) • CNF Learning Portal - Child Neurology Foundation • AHC Episode Recording App: Pilot Study • Silver Transparency 2024 Profile • Alice Belgrade: AHC, Behavior and Self-Esteem presentation • Family Meeting Presentations 2023 • Ketogenic Therapies Webinar • Subscribe to AHCF Newsletter