Muscular Dystrophy UK
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Muscular Dystrophy UK has been a member of Linktree for 5 years and joined in June 2021. The social media accounts linked to from Muscular Dystrophy UK are: • Facebook • Instagram • Spotify • YouTube • X Besides social media accounts, MDUK has populated their site with: • Understanding how Duchenne muscular dystrophy affects brain function • Stay in touch and find out how you can get involved in our campaigning • Sign the petition to fix NHS continuing healthcare • Every newborn baby in England to be screened for SMA - Muscular Dystrophy UK • Sign our petition for a better disability benefits system 🧡 • Take our community survey • “We've always encouraged Amelie to focus on what she can do, despite having Ullrich.” - Muscular Dystrophy UK • Read Sam's story about running 100km for his brother Tom • Join our myasthenia gravis support group • Sign our petition for a PIP system that treats people with dignity • Find out more about newborn screening for SMA • Sign In • England Rare Diseases Action Plan 2026: main report • Find out how you can get involved with Game On • Disability Pride Month • ‘Hiking for Hope’: climbing Snowdon in memory of my brother • What I have lost and gained living with Duchenne muscular dystrophy • "Hydrotherapy has helped my condition so much – now I’m helping others access it" • Apply for London Marathon Assisted Wheelchair entry • Our work with partners to speed up the introduction of newborn screening for Spinal Muscular Atrophy - Muscular Dystrophy UK • Our £1 million investment to transform clinical trials for Charcot-Marie-Tooth disease • “We’re a close family and this is my way of showing support” • “It’s our happy place but also where we’ve seen Bertie’s muscular dystrophy play out” - Muscular Dystrophy UK • “My new wheelchair means I can join in with my school friends.” - Muscular Dystrophy UK • How we’re supporting the future of research into muscle wasting conditions - Muscular Dystrophy UK • “I have a greater perspective on life thanks to being Frankie’s Dad” - Muscular Dystrophy UK • PhD student living with LGMD to play key race starter role in the Bidwells Oxford 10k - Muscular Dystrophy UK • PIP ‘not fit for purpose’, Timms Review says - Muscular Dystrophy UK • Local Muscle Groups - Muscular Dystrophy UK • Sign up for the 2027 London Marathon with #TeamMDUK • www.musculardystrophyuk.org • Read more about the impact of extreme weather on our community • Read about Faye's Emery-Dreifuss muscular dystrophy diagnosis • https://www.musculardystrophyuk.org/news/2023-2024-impact-report-muscle-wasting-community-achievements/ • Financial support for wheelchairs and mobility aids 🧑🦼➡️ • l.facebook.com • Find out more about the Superhero Triathlon and sign up! • Young persons WhatsApp group (14-17) - Muscular Dystrophy UK • Sign up for Pedal Paddle Peak Jurassic Coast 🚣🚴⛰️ • https://www.musculardystrophyuk.org/about-us/stories/detail/timely-diagnosis-access-to-healthcare/ • Fundraise your way - Muscular Dystrophy UK • BBC Two - RHS Chelsea Flower Show - The People's Choice Award at RHS Chelsea Flower Show 2024 • Millie's journey to tackling an 150 mile challenge with LGMD • Collaborating with breast cancer awareness charity CoppaFeel! - Muscular Dystrophy UK • Sign up for our campaigning webinar • Listen to the latest episode of the muscles matter podcast • PIP helps me stay independent – but the system needs to change - Muscular Dystrophy UK • “Every step is in memory of those we’ve lost”: Krishan's story • “How my diagnosis allowed me to rediscover rugby – in a wheelchair!” - Muscular Dystrophy UK • "I had to wait 10 years to be diagnosed with FSHD" - read Zoe's story • Our view on the assisted dying bill • “I can brush my own teeth again thanks to mobile arm supports” • Gerry's story - living with myasthenia gravis • Ten new treatments in ten years - how much has changed in the last decade • SMA newborn screening debate - write to your MP • Housing equipment grant - find out more • “I like helping people, I want to give something back” - Kathryn's story • Read Lorna and Ed's story for Carers Week • Sign the joint petition to fix NHS continuing healthcare support • How we're supporting the next generation of researchers 🔬 • Translarna not accepted for NHS use in Scotland - read more • Read about Becky and Toby's myotonic dystrophy diagnosis • Get involved with our volunteering • Sign up to take part in the London Marathon 2027 for us! • Assisted wheelchair entry | London Marathon 2027 • Sign the petition to change the disability benefits system • Read about out volunteers' impact for our community 💪 • "Creativity is my escape": Read Joe's story for National Creativity Day • Lauren's 249,000 steps in May for her daughter - Muscular Dystrophy UK • Read about our Quality of Life research grants • A new home for our Chelsea Flower Show garden 🌳 • How extreme weather affects people with muscle wasting conditions • Read Henry's story about FSHD diagnosis and starting Ultra Marathon • Write to your MP about the SMA newborn screening debate • Date announced for SMA newborn screening debate • Read amazing Maisie's story • Disabled man 'rotting' on a hospital ward - despite being told he is fit to go home - BBC News • Can what we eat help with muscle wasting conditions? • Read about Max's dad's 100km fundraising journey • Using a ventilator mask with facial recognition • Read Becca's story about her SMA treatment • Two new SMA treatments approved for use in England • New research to spot mental health impacts of DMD • Read about Rachel's work for International Nurses' Day • What the 2026 UK election results mean for our community • Read about Givinostat being approved for DMD in England • Read Liz and Chris' story • Sign up for Kiltwalk! • Apply for a specialised wheelchair grant • Read Susan's story about being a manifesting DMD carrier • Explore the Muscular Dystrophy UK online shop! • Read about the new Right to Try benefit rules • Myasthenia gravis treatment approved for NHS use in England - Muscular Dystrophy UK • Read Zoe's story about living with limb girdle muscular dystrophy • Sign up for the London Marathon 2027 • Professor Muntoni wins prestigious award for Duchenne research • Our guide to the Scottish Parliament election 2026 • Read Jono's story about self-propeling the London Marathon • 🏴 2026 Senedd election: What’s changing and why it matters • Read about our Stronger Together Awards winners 🏆 • Share your views on Personal Independence Payments (PIP) • Read Kiera's story of her first London Marathon in a wheelchair • Read more about Pompe Disease and research into new treatments • Running the London Marathon with FSHD - Oliver's story • Read Dani's experience of having a sibling with Duchenne • Emma's story about losing her Continuing Healthcare support • Read Bernie and Amanda's stories living with myasthenia gravis • Read about MAGIC's research into gene therapies • Read the new report on improving rare disease treatment access • Katrina's story - becoming a vet despite Bethlem myopathy • Read Becky's story - running the London marathon for her mum • Meet the man behind the Running Phone Box - Muscular Dystrophy UK • Read about our community's experiences with Access to Work • Listen to the latest muscles matter podcast about women's healthcare • Family living with FSHD will start our Oxford 10k - read more • Read Olivia's story about caring for her dad • How Sophie became Boccia number one aged 18 • Scotland begins testing newborn babies for SMA • Roche ends trials of treatment for SMA and FSHD • Read Sophie's story about living with LGMD • Find out more about Jack's book 'I’m on a Journey to See You, Sam' • Research update: strength training and myotonic dystrophy • Read Nick's story about creativity and living with Becker MD • Update on assessment of givinostat for NHS use in England • Sign up for Pedal Paddle Peak 2026 - Lake District • Read Becky's story about her myotonic dystrophy diagnosis • Walking 5,000 miles for Jack - Read Jack and Stephen's story • Get support if you're a young carer • Sign up to our Myasthenia Gravis support group • Another myasthenia gravis treatment rejected for NHS use in the UK - Muscular Dystrophy UK • Women’s Health in Focus: spotlight on women's issues • New digital tool to spot DMD features earlier • Read Louise's story about her partner's Becker diagnosis • Sign the petition to add SMA to newborn screening • Use your passion for gaming to fundraise for MDUK • Find out more about Pedal Paddle Peak Lake District ⛰️ • Listen to the latest episode of our Muscles Matter Podcast 🎙️ • Read Genetic Alliance UK's report on rare disease healthcare • Read about Paul's 54 mile fundraising challenge! • Read Jan's story about her granddaughter Evie • Jesy Nelson's petition to introduce newborn screening for SMA - Muscular Dystrophy UK • Meet our new trustees - Muscular Dystrophy UK • Read Liz's Pedal Paddle Peak story and sign up for this year's event! • Sign up for our North West Big Weekend 2026! • Read about Isobel's research into treatments for BMD • Read Roxanne's story about supporting her son with Duchenne and autism • Book your place at Game On 101! • Access peer support - Muscular Dystrophy UK • Read Ann's story about Hollie's SMA diagnosis and gene therapy • Read our CEO Andy's reflections on his first year at MDUK • New e-learning hub for Allied Health Professionals - Muscular Dystrophy UK • George's Journey - raising £250,000 for Duchenne research • Appeal success: myasthenia gravis treatment zilucoplan reconsidered for NHS use • Living with fatigue: voices from the muscle wasting community • Vote for 'A world without limits' in the Smiley Charity Film Awards • In memory of Charles Scott - Muscular Dystrophy UK • Sign up to an Information Day in York, Birmingham or Scotland • "We thought our son just had dyspraxia - we never expected he had Duchenne" - Muscular Dystrophy UK • Join our siblings virtual therapeutic support group • Join our lay research panel! • Runner crosses the finish line of all six-star major marathons - Muscular Dystrophy UK • What would it cost to add SMA to newborn screening? • Duchenne and Bone Health: updated guidance for adults - Muscular Dystrophy UK • It's normal to be different: rolling through life with muscular dystrophy - Muscular Dystrophy UK • Share your story • Stay connected with our community • SMA explained: Reflecting on Jesy Nelson's news - Muscular Dystrophy UK • Listen to our December podcast here • Visit the MDUK shop • Double your donation here • Council, Committee, and Peer Support Volunteering • Read about Alex and Declan #GriefAwarenessWeek • Read our latest opinion blog • Read our summary of the Autumn Budget announcement • Learn more about the Everyday Stories study • Sign up to Kiltwalk 2026 • Spirit of Christmas tickets • Read Olivia's story • Read Nancy's story #CarersRightsDay • Read Ian's story #InternationalMensDay • Learn more about our research • Give the gift of hope • Read our impact report • Learn more about our Trustees • Read about 'Max Matters' • September Muscles Matter podcast • Register for our Jurassic Coast PPP • A Statement from NorthStar on Givinostat - Muscular Dystrophy UK • How many people are living with muscle wasting conditions in the UK? • View our upcoming information days • Register for PPP Lake District 2026! • "I used to believe my worth was tied to what I could do physically." • Read Ryan's story #BeckerAwarenessWeek • Tell us your story • Learn more about Charlotte & Tom's story • Read Chris Hooper's story • Nominations open - Stronger Together Awards • AI - helping doctors diagnose muscle wasting conditions faster • “I didn’t know I could do rock climbing with my FSHD. Now I’m training for the Paralympics.” • Our bold new ten-year strategy • Our myotonic dystrophy research • BGC Charity • “FSHD hasn’t stopped me working as a paramedic.” • Read Alfie's story • Read more about Stephanie's journey • Contact our peer support team • The effects of climate change on our community • He lives with daily pain and yet continues to show strength. I’m doing this for him • Sign up to our Congenital Myotonic Dystrophy webinar • Read about latest research into exercise • Find out more about CrotFest • Apply for a Joseph Patrick Trust (JPT) grant • Apply for our Vice Chair vacancy • Apply for our Trustee vacancy • Cycling 100km to kickstart fundraising for ‘Declan’s Muscle Mission’ • Introduction of newborn screening for SMA • Read our blog on the givinostat decision • Understanding research • Take the TK2d Experience Survey • London to Paris – the hard way! Arch 2 Arc triathlon in support of friend’s son • My journey as a disabled entrepreneur - not the road most travelled, but one that’s mine • Muscular Dystrophy UK podcast: Muscles Matter - Muscular Dystrophy UK • ‘I couldn’t even run 100 metres at school, now I’m running 5ks — here’s what I’ve learnt.” • Ollie's Marathon Challenge • “As parents you can feel pretty helpless, so we’re doing this for Lance” - Muscular Dystrophy UK • We’re calling on the UK Government to tackle the challenges faced by people with muscle wasting and weakening conditions in its upcoming 10 Year Health Plan - Muscular Dystrophy UK • Support and information - Muscular Dystrophy UK • Second treatment for myasthenia gravis not approved for NHS use in England - Muscular Dystrophy UK • Triple Challenge: Pedal Paddle Peak 2025 – Yr Wyddfa (Snowdon) - Muscular Dystrophy UK • Climbing the Three Peaks in support of my son - Muscular Dystrophy UK • “My two daughters and I all have FSHD, but we have very different symptoms.” - Muscular Dystrophy UK • Supporting mental wellbeing for children - Muscular Dystrophy UK • Add your name 📢 • Treatment for myasthenia gravis not approved for NHS use in England - Muscular Dystrophy UK • Volunteer Vacancies - Muscular Dystrophy UK • Givinostat access: progress made and the work still to do - Muscular Dystrophy UK • "Beyond the physical: navigating the mental health challenges of muscle wasting conditions" - Muscular Dystrophy UK • “His new all-terrain wheelchair has given our son his smile back.” - Muscular Dystrophy UK • A potential treatment for Pompe disease shows future promise - Muscular Dystrophy UK • Inclusive beach day - Muscular Dystrophy UK • New partnership blooms with Blue Diamond Garden Centres - Muscular Dystrophy UK • Givinostat – our role in supporting access to new treatments - Muscular Dystrophy UK • “My dream of being a professional footballer was crushed by my diagnosis – here’s how I found a new purpose.” - Muscular Dystrophy UK • “Finding creative adaptions has allowed me to juggle being a mum and running my own business.” - Muscular Dystrophy UK • “Plenty of people don’t breathe in the conventional way with modern ventilation”– my research projects as someone with a muscle wasting condition - Muscular Dystrophy UK • “My son’s biggest wish is for ‘a new medicine because then he might be quicker on his feet.’ It breaks my heart he’s being denied that chance” - waiting for givinostat - Muscular Dystrophy UK • “We want to give something back”: siblings run Half Marathon in support of mum - Muscular Dystrophy UK • The things people don’t see: the everyday challenges of living with a muscle wasting condition - Muscular Dystrophy UK • In conversation: Director Benjamin Ree on The Remarkable Life of Ibelin • TCS London Marathon 2026 - Muscular Dystrophy UK • From putting out fires to putting golf balls at an elite level: Jason’s journey into the world of golf - Muscular Dystrophy UK • Bidwells Oxford 10K 2025 (Sold out) - Muscular Dystrophy UK • "I've written the book I wish I'd been able to read growing up." - Muscular Dystrophy UK • Leave a gift in your Will - Muscular Dystrophy UK • From cake sale to abseil: fundraising in support of my grandson - Muscular Dystrophy UK • Episode 1 - Top daily challenges of living with a muscle wasting condition • Proposed welfare reforms and benefits cuts: what do we know about how this will affect people with muscle wasting and weakening conditions? - Muscular Dystrophy UK • Lifechanging grants for children – our new partnership with Whizz Kidz - Muscular Dystrophy UK • The cost of cuts to disability benefits: Our open letter to the Chancellor | Disability charity Scope UK • President’s Awards celebrate outstanding achievements - Muscular Dystrophy UK • “Inspired by his courage”: Running the London Marathon in memory of my brother - Muscular Dystrophy UK • Buy The Universe in My Wardrobe • Virtual therapeutic support groups - Muscular Dystrophy UK • Alert card order form - Muscular Dystrophy UK • “Having a disability can be isolating - I’m grateful I’ve found the South Asian Neuromuscular Community group.” - Muscular Dystrophy UK • Dating with a disability - Muscular Dystrophy UK • Information days - Muscular Dystrophy UK • Young Adult Catch Up - Muscular Dystrophy UK • “I’ve been a single mum for 40 years and have three children, two with Duchenne” – here’s what I wish I’d known. - Muscular Dystrophy UK • “We can feel January blues for the whole of winter!” - Muscular Dystrophy UK • NICE does not recommend NHS use of efgartigimod for treating generalised myasthenia gravis - Muscular Dystrophy UK • ‘Ramaganza’ online gaming marathon in memory of friend’s daughter - Muscular Dystrophy UK • Kilimanjaro Trek 2025 - Muscular Dystrophy UK • Northern Ireland Disability Sports Event - Muscular Dystrophy UK • Employability service - Muscular Dystrophy UK • Being a Muscle Group chair has allowed me to form new friendships - Muscular Dystrophy UK • New drug for Duchenne muscular dystrophy to be made available in Scotland - Muscular Dystrophy UK • Muscle Groups dates announced - Muscular Dystrophy UK • “Vamorolone helped my son maintain his independence” - Muscular Dystrophy UK • NICE recommends new drug for Duchenne muscular dystrophy to be made available in England - Muscular Dystrophy UK • Double Your Donation - Muscular Dystrophy UK • Support with bereavement, grief, and loss - Muscular Dystrophy UK • “My care has been cut by nearly half – I can hardly leave the house now” - Muscular Dystrophy UK • “My biggest struggle is how isolated that I feel” - Muscular Dystrophy UK • Changes to disabled employment rights across the years - Muscular Dystrophy UK • Missing people. Missing support. - Muscular Dystrophy UK • Using state-of-the-art genetic sequencing techniques to find genes that cause limb-girdle muscular dystrophies - Muscular Dystrophy UK • “I put extra blankets on because we can’t afford the heating – but it means I can’t move” - Muscular Dystrophy UK • Christmas Appeal - Muscular Dystrophy UK • Our President's Awards - Muscular Dystrophy UK • “My husband and I lost a lot of our benefits because we chose to get married and live together” - Muscular Dystrophy UK • Christmas Raffle - Muscular Dystrophy UK • “It took five years for my son to get diagnosed with Ullrich” - Muscular Dystrophy UK • Kiltwalk Series 2025 - Muscular Dystrophy UK • Running a half marathon to support my brother - Muscular Dystrophy UK • Research Archive - Muscular Dystrophy UK • Join us at Scottish Parliament - Muscular Dystrophy UK • Meet our new trustee, Chloe: “I welcome the opportunity to raise awareness and help find solutions” - Muscular Dystrophy UK • Running 53 miles in support of my brother - Muscular Dystrophy UK • Oxford octogenarian walks 80 miles in 80 hours to mark 80th birthday - Muscular Dystrophy UK • “Being diagnosed with CMT as a teenager was difficult to cope with.” - Muscular Dystrophy UK • Checking your chest when you struggle to ‘CoppaFeel!’ - Muscular Dystrophy UK • The Remarkable Life of Ibelin - Muscular Dystrophy UK • Reflections on the 2023-2024 impact report • CeX raises £200,000 through donations and customer trade-in scheme - Muscular Dystrophy UK • Running in memory of my wife and to help others - Muscular Dystrophy UK • Developing a mouse model and treatment for SORD neuropathy - Muscular Dystrophy UK • “Nobody warned me that menopause could make my condition deteriorate.” - Muscular Dystrophy UK • L-CMD Virtual Information Seminar - Muscular Dystrophy UK • Our 2025 research grant round is now open - Muscular Dystrophy UK • Young Adult Monthly Catch Ups: With Becca (Our Stories Officer) - Muscular Dystrophy UK • “Fundraising for research is important to me”: why I did a skydive for my 75th birthday - Muscular Dystrophy UK • Climbing Mount Kilimanjaro for Frankie - Muscular Dystrophy UK • Support groups - Muscular Dystrophy UK • A challenge for our boys: Couple take on Pedal Paddle Peak for sons living with Becker muscular dystrophy - Muscular Dystrophy UK • Virtual Information Seminar: Becker Muscular Dystrophy - Muscular Dystrophy UK • “We went big for Bake a Difference” - Muscular Dystrophy UK • First newborns join screening for more than 200 rare diseases • “I hope that by pushing myself, I will inspire others” - Muscular Dystrophy UK • Comedy night with Jon Richardson and friends - Muscular Dystrophy UK • Community Research Hub - Muscular Dystrophy UK • “The charity’s employability helpline has massively improved my confidence” - Muscular Dystrophy UK • Developing a new gene therapy for periodic paralysis - Muscular Dystrophy UK • "I am following my dream career" - Bidwells 10k Cambridge race starter story - Muscular Dystrophy UK • “Growing the OPMD community has helped me with my own condition progression” – celebrating OPMD awareness day - Muscular Dystrophy UK • Pedal Paddle Peak 2025 – Yr Wyddfa (Snowdon) - Muscular Dystrophy UK • Dietary supplements as a potential new treatment for mitochondrial myopathies - Muscular Dystrophy UK • Developing a gene therapy for desminopathy - Muscular Dystrophy UK • Content Creator - Muscular Dystrophy UK • “CrossFit has helped us with our conditions – now we’re competing in the world championship” - Muscular Dystrophy UK • Understanding the molecular processes that cause the progression of FSHD - Muscular Dystrophy UK • ‘Best in Show’ garden relocating to Glasgow after RHS Chelsea Flower Show - Muscular Dystrophy UK • Improving accessibility of bone density scanning for wheelchair users living with muscle wasting conditions - Muscular Dystrophy UK • Disappointing results from phase 3 FSHD clinical trial - Muscular Dystrophy UK • Take our financial security survey • Understanding how Duchene muscular dystrophy affects brain function - Muscular Dystrophy UK • Celebrating 20 years: NorthStar a ‘shining light’ for people living with Duchenne muscular dystrophy - Muscular Dystrophy UK • Developing a gene editing technique as a potential treatment for Duchenne muscular dystrophy - Muscular Dystrophy UK • What is muscular dystrophy? - Muscular Dystrophy UK • AI and MRI: improving the diagnosis of people with muscle wasting conditions - Muscular Dystrophy UK • “We need to normalise disabled people having children” - Muscular Dystrophy UK • We’re investing £1.7m into new research - Muscular Dystrophy UK • Competing in the Paralympics with muscular dystrophy - Muscular Dystrophy UK • Walking for Holly: a family Kiltwalk challenge - Muscular Dystrophy UK • “I haven’t seen enough barristers who look like me – I’m changing that for others.” - Muscular Dystrophy UK • Andy Fletcher appointed as our new Chief Executive - Muscular Dystrophy UK • Online Sim Racing fundraiser in memory of dad - Muscular Dystrophy UK • Our research impact - Muscular Dystrophy UK • Flying high with muscular dystrophy - Muscular Dystrophy UK • Family and friends Zip Slide the Clyde to raise awareness and funds - Muscular Dystrophy UK • “Everyone had given up on my granddaughter – until we found Muscular Dystrophy UK and the South East Wales Neuromuscular team” - Muscular Dystrophy UK • “My husband used my condition against me and would push me over” – Getting out of my abusive relationship - Muscular Dystrophy UK • Open grant calls - Muscular Dystrophy UK • “My new wheelchair means I can cook breakfast for my daughter” - Muscular Dystrophy UK • ‘I’ve achieved my dream of becoming a vet despite having Bethlem myopathy” - Muscular Dystrophy UK • Fighting for James, Joshua and Myles: Mum takes on Pedal Paddle Peak challenge for sons - Muscular Dystrophy UK • Using MRI to tell dysferlinopathy apart from other genetic muscle wasting conditions - Muscular Dystrophy UK • Calling for more fully accessible toilets - Muscular Dystrophy UK • “It took me thirty years to get diagnosed with myotubular myopathy.” - Muscular Dystrophy UK • ‘I’ve cycled halfway round the world with FSHD’ - Muscular Dystrophy UK • What should the new UK Government prioritise in its first 100 days to support people living with muscle wasting and weakening conditions? • My life with Ullrich congenital muscular dystrophy - Muscular Dystrophy UK • Pedal Paddle Peak 2025 - The Lake District - Muscular Dystrophy UK • “I’d been looking for a fundraiser for my son… When I heard about Game On it was perfect!” - Muscular Dystrophy UK • Friends and colleagues take on challenge to support ‘A Wish for Eben’ - Muscular Dystrophy UK • General Election 2024 - Muscular Dystrophy UK • NICE publishes draft guidance on zilucoplan for myasthenia gravis treatment - Muscular Dystrophy UK • Government planning changes to disability benefit system - Muscular Dystrophy UK • Survey on the UK Government's proposed reforms of Personal Independence Payment • Virtual information seminar: nemaline myopathy - Muscular Dystrophy UK • Siblings take on Kids Triathlon in support of cousin living with muscular dystrophy - Muscular Dystrophy UK • We’re calling for the next Government to increase knowledge of muscle wasting and weakening conditions among non-neuromuscular specialist healthcare professionals - Muscular Dystrophy UK • Understanding how symptoms of nemaline myopathies change over time - Muscular Dystrophy UK • Webinar: nemaline myopathy - Muscular Dystrophy UK • TCS London Marathon 2025 - Muscular Dystrophy UK • ‘Christopher’s Champions’: Pedal Paddle Peak challenge in memory of son and brother - Muscular Dystrophy UK • Researchers test old drugs for potential treatment in spinal muscular atrophy (SMA) - Muscular Dystrophy UK • “Applying for housing adaptions is a minefield” - Muscular Dystrophy UK • We’re calling on the next Government to maintain the UK’s position as a world leading centre for research excellence. - Muscular Dystrophy UK • Information Day Community opinion survey • Young Adult Monthly Catch Ups: Travel and Holidays - Muscular Dystrophy UK • Adversity > Aspirations > Adapting (an alternate Father’s Day Guide) - Muscular Dystrophy UK • Putting carers on the map - Muscular Dystrophy UK • Finding and enjoying a fundraising project - Muscular Dystrophy UK • “I had to work through 11 years of repressed grief when I was finally diagnosed.” - Muscular Dystrophy UK • Guinness World Record title for charity cycling challenge - Muscular Dystrophy UK • We’re calling for people living with a muscle wasting and weakening condition to get a timely diagnosis, and the earliest access to the right treatment, care and support - Muscular Dystrophy UK • “I worked as a carer while studying – it was the most rewarding job I’d ever had” - Muscular Dystrophy UK • Virtual information seminar: Facioscapulohumeral Muscular Dystrophy (FSHD) - Muscular Dystrophy UK • We’re calling for people living with a muscle wasting and weakening condition to be able to feel more financially secure - Muscular Dystrophy UK • “I use my life experiences to support others in the community” – being a Peer Support Volunteer - Muscular Dystrophy UK • “My family have been fundraising for Muscular Dystrophy UK for three generations” - Muscular Dystrophy UK • Bringing people together as a Muscle Group chair - Muscular Dystrophy UK • Volunteers’ Week - celebrating our volunteers - Muscular Dystrophy UK • 2024 virtual information seminar on Duchenne Muscular Dystrophy (Paediatrics) - Muscular Dystrophy UK • “Gaming is my freedom and escape” - Muscular Dystrophy UK • Preliminary results of the RACER53 Phase 3 study for boys with Duchenne muscular dystrophy - Muscular Dystrophy UK • Finding strength in gratitude and beauty around you – a book of joy - Muscular Dystrophy UK • Taking part in a clinical trial and finding comfort in my music - Muscular Dystrophy UK • Benefits of art therapy for children with muscle wasting conditions - Muscular Dystrophy UK • Stay connected with our community - Muscular Dystrophy UK • Raising awareness of muscle wasting conditions amongst health professionals - Muscular Dystrophy UK • Enter to win a garden consultation with Ula Maria • Meet researcher Dr William Duddy: ‘Personal experience helped shape my career’ - Muscular Dystrophy UK • “My flight home from a holiday has left me traumatised.” - Muscular Dystrophy UK • Enjoying nature as a disabled family - Muscular Dystrophy UK • The benefits of forest bathing - Muscular Dystrophy UK • Lifechanging grants making a difference | Muscular Dystrophy UK • “It’s an honour to provide families with support” – a nurse’s career journey | Muscular Dystrophy UK • Myology 2024 Paris conference update | Muscular Dystrophy UK • Long-standing volunteers to play key ‘race starter’ role in sell-out Bidwells Oxford 10k | Muscular Dystrophy UK • How you’re shaping our work | Muscular Dystrophy UK • ‘I never felt more alone than during my diagnosis’ – the story that inspired our Chelsea Flower Show Garden | Muscular Dystrophy UK • Shop the Forest Bathing Garden collection • 17th UK Neuromuscular Translational Research Conference update | Muscular Dystrophy UK • All Events | Muscular Dystrophy UK • RHS Chelsea Flower Show 2024: Inside the Forest Bathing Garden for Muscular Dystrophy UK • Virtual therapeutic support groups | Muscular Dystrophy UK • 'Anxiety controlled my teenage years' | Muscular Dystrophy UK • Help GPs to learn more about muscle wasting and weakening conditions - | Muscular Dystrophy UK • Open Gardens 2024 | Muscular Dystrophy UK • I want to collect! | Muscular Dystrophy UK • Comedy night with Jon Richardson and friends | Muscular Dystrophy UK • Coming together as a community: celebrating our recent Information Days | Muscular Dystrophy UK • ‘Accessible technology: staying independent and connected’ | Muscular Dystrophy UK • Meet our RHS Chelsea Flower Show garden designer: Ula Maria | Muscular Dystrophy UK • New research centre will unlock tests and treatments for people living with rare mitochondrial diseases | Muscular Dystrophy UK • Chief Executive Catherine Woodhead to leave Muscular Dystrophy UK | Muscular Dystrophy UK • We’ve been awarded a quality mark for our health and care information | Muscular Dystrophy UK • TCS London Marathon 2025 | Muscular Dystrophy UK • Good luck to all our London Marathon runners | Muscular Dystrophy UK • Survey findings from ‘What do you wear in your wheelchair?’ | Muscular Dystrophy UK • Adventure is out there: Martin's accessible outdoor spaces | Muscular Dystrophy UK • Turning a diagnosis into a purpose: John Foxwell | Muscular Dystrophy UK • Charcot-Marie Tooth runs in my family so I’m running the London marathon • Designing funky products for the disabled community • Accessing sexual healthcare as a disabled woman: Lauren and Rebecca’s story • The Continuing Healthcare process needs to be appropriate to progressive degenerative conditions | Muscular Dystrophy UK • Adult’s WhatsApp Group (30+) | Muscular Dystrophy UK • Gardening advice from Ula Maria: Our Forest Bathing RHS Chelsea Flower Show garden designer | Muscular Dystrophy UK • Helping us understand congenital myopathies: a new study of changes to an important muscle protein is providing insights | Muscular Dystrophy UK • NICE publishes draft guidance on vamorolone for treating Duchenne muscular dystrophy • Young Adult Monthly Catch Up: Mental Health and Wellbeing Support | Muscular Dystrophy UK • Free Wills service | Muscular Dystrophy UK • Wales Information Day (Cardiff)/ Diwrnod Gwybodaeth Cymru (Caerdydd) | Muscular Dystrophy UK • Approval of Duvyzat (givinostat) for Duchenne muscular dystrophy in the USA • ADHD and muscular dystrophy means your brain and body are constantly fighting each other | Muscular Dystrophy UK • MDA clinical and scientific conference 2024: Andrea’s update • The role of periostin in duchenne muscular dystrophy • Virtual information seminar: Spinal muscular atrophy (SMA) Treatments | Muscular Dystrophy UK • Being a mum is the most rewarding experience of my life | Muscular Dystrophy UK • Debbie's RHS Chelsea Flower Show Update | Muscular Dystrophy UK • What are the key takeaways from the Government’s Spring Budget? | Muscular Dystrophy UK • Overview of our successful Care Advisors Conference 2024 | Muscular Dystrophy UK • Making music and DJing with Duchenne muscular dystrophy • Muscular dystrophy hasn’t stopped me becoming a physiotherapist | Muscular Dystrophy UK • Supporting our community’s mental health with Louise Halling | Muscular Dystrophy UK • Tom's eight marathons | Muscular Dystrophy UK • Our helpline is here for you | Muscular Dystrophy UK • Taking on Mount Kilimanjaro in grandma’s memory | Muscular Dystrophy UK • Our President’s Awards | Muscular Dystrophy UK • Scottish Conference | Muscular Dystrophy UK • Wales Information Day (Cardiff) | Muscular Dystrophy UK • Vote for us as People's Choice winner in the Smiley Charity Film Awards • Young adults monthly catch up: lived experience | Muscular Dystrophy UK • Great North Run 2024 | Muscular Dystrophy UK • Myasthenia Gravis virtual information seminar | Muscular Dystrophy UK • Recognising scientist Linda Popplewell on International Day of Women and Girls in Science | Muscular Dystrophy UK • Neuromuscular Pilates videos | Muscular Dystrophy UK • Government fails to act on their 2022 commitment to increase financial support through the Disabled Facilities Grant | Muscular Dystrophy UK • Go Bright - Go Bright | Muscular Dystrophy UK • Get in touch re Peer Support | Muscular Dystrophy UK • Local Muscle Groups | Muscular Dystrophy UK • Changing the landscape for clinical trials in the UK - celebrating the fifth anniversary of the MDUK Oxford Neuromuscular Centre | Muscular Dystrophy UK • England Information Day | Muscular Dystrophy UK • Parent's Support Group | Facebook • Recognising outstanding neuromuscular centres across the UK | Muscular Dystrophy UK • Myasthenia Gravis Support Group Registration • Events - Support for Young People | Muscular Dystrophy UK • Our helpline | Muscular Dystrophy UK • #Team Ella | Muscular Dystrophy UK • Research: Successful use of a self-management support programme in neuromuscular specialist centres | Muscular Dystrophy UK • Challenges | Muscular Dystrophy UK • Runs | Muscular Dystrophy UK • Find a volunteer role | Muscular Dystrophy UK • Muscle Groups, Virtual information seminars and Information Days • Peer support for you | Muscular Dystrophy UK • New research announced to understanding liver disease in people living with X-linked myotubular myopathy | Muscular Dystrophy UK • Vote for our film in the Smiley CFA Charity Film Awards • Your heart-warming words of wisdom on growing up with a muscle wasting condition | Muscular Dystrophy UK • Bereavement, Grief, and Loss - Bereavement, Grief, and Loss | Muscular Dystrophy UK • Organise a collection | Muscular Dystrophy UK • What are the key takeaways from the Government’s Autumn Statement? | Muscular Dystrophy UK • Skin cells' potential to form muscle cell models | Muscular Dystrophy UK • Disability History Month: your school experiences of Physical Education | Muscular Dystrophy UK • Reflection on the Annual Report | Muscular Dystrophy UK • Muscular Dystrophy UK online shop • Support for carers | Muscular Dystrophy UK • Writing for wellbeing: how it works for me by Trish | Muscular Dystrophy UK • Trustees Week- New Trustees | Muscular Dystrophy UK • Joseph Patrick Trust Grants for Mobility Equipment | Muscular Dystrophy UK • We'll be at RHS Chelsea Flower Show 2024 | Muscular Dystrophy UK • Legacy Marketing Lead Job- Apply now! | Muscular Dystrophy UK • Research into X-linked spinal muscular atrophy | Muscular Dystrophy UK • Courageous Carmela is on a roll • What was it like growing up with a muscle wasting condition? Survey • Virtual information seminar: Pompe disease | Muscular Dystrophy UK • MDUK training for healthcare professionals • Update on the 28th annual World Muscle Society 2023 Congress | Muscular Dystrophy UK • Funding for new blood test developed for diagnosis of muscle wasting conditions at the University of Ulster - Muscular Dystrophy UK • Mental Health Factsheet︱Muscular Dystrophy UK • Inclusivity and advice for mental health | Muscular Dystrophy UK • 2024 research grant round now open for applications | Muscular Dystrophy UK • Northern Ireland Information Day – connecting our community | Muscular Dystrophy UK • Genome editing for Becker muscular dystrophy | Muscular Dystrophy UK • Jonathan's Story • Understanding the immune response in people with myasthenia gravis | Muscular Dystrophy UK • Virtual information seminar: Becker muscular dystrophy • Bake a Difference • Diagnosis of primary mitochondrial myopathies using MRI to measure how muscles use oxygen | Muscular Dystrophy UK • Fatigue Handbook • Using antibiotics to treat symptoms of myotonic dystrophy type 1 • Understanding changes in mitochondria in muscles of people with myotonic dystrophy type 1 • Celebrating our first ever accessible golf day • 2023 Research Grants • Northern Ireland Information Day • Virtual Therapeutic Support • London Marathon 2024 • Tiffany's Story | Muscular Dystrophy UK • Sheila's Story | Muscular Dystrophy UK • Dean's Story | Muscular Dystrophy UK • Morvenna's Story | Muscular Dystrophy UK • Proposed ticket office closures • David's Golf Fundraiser | Muscular Dystrophy UK • Jack's Story | Muscular Dystrophy UK • Sign up to our newsletter • We’re proud to reveal our refreshed brand • Jessie and Hayley's Story | Muscular Dystrophy UK • Digital Marketing Officer (Organic social media and website) | Jobs • Pedal Paddle Peak 2024 - The Lake District | Muscular Dystrophy UK • Duchenne dating and sexuality | James' Story • Dawn and Andy's Story • Chris's Story • Celebrity Sports Quiz • BBC Drama Best Interests information and support | Muscular Dystrophy UK • Carmela's Wonder Wheels Cycling Challenge | Muscular Dystrophy UK • Recognising and supporting carers in the community, and the challenges they face | Muscular Dystrophy UK • ‘As a shy teenager, volunteering really pushed me out of my comfort zone – for the better’ | Muscular Dystrophy UK • Supporting someone living with myasthenia gravis – share your experience to further new treatment decisions | Muscular Dystrophy UK • Great North Run 2023 | Muscular Dystrophy UK • Daniel's story • My chat with Professor Volker Straub • Anne's story • Louise's experiences - Mental Health Awareness Week • Gemma's story • Meet the #TeamOrange Bidwells Oxford Town & Gown 10k runners • Sara's Story • Jed's Story • Kiana's Story • Experiences Survey • Gabby Logan's story • Good luck to all our MDUK marathon runners going the extra mile for people living with muscle-wasting conditions | Muscular Dystrophy UK • Josie's Story • The John Walton Muscular Dystrophy Research Centre | Muscular Dystrophy UK • Cost of living | Muscular Dystrophy UK • Jason's Story • Gitte's Story • Retired England rugby player Charlie Hodgson tackles the London Marathon | Muscular Dystrophy UK • RideLondon-Essex 100 - sign up now! • ”Typing up a storm – why we need better awareness of disabilities and adjustments in the workplace” | Muscular Dystrophy UK • Gem's Story • President's Awards: Tiffany Hesson • President's Awards: Emma-Jayne Ashley • President's Awards: Claire Boylan • President's Awards: Dr Vino Vivekanandam • President's Awards: The Chubb Family • President's Awards: Chloe Ball-Hopkins • President's Awards • Researching the cure and running for the cause: Dr Valeria Di Leo takes on the Great North Run • Leading property consultant Bidwells announced as headline partner for historic Town and Gown 10k series | Muscular Dystrophy UK • We catch up with Tiffany Hesson about her personal commitment to championing diversity within the muscle-wasting community. • Join #TeamOrange and skydive MDUK • NICE publishes final guidance recommending access to Duchenne muscular dystrophy treatment Translarna • Events • Website • Twitter • Donate
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