Muscular Dystrophy UK
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Muscular Dystrophy UK has been a member of Linktree for 5 years and joined in June 2021. The social media accounts linked to from Muscular Dystrophy UK are: Facebook, Instagram, Spotify, YouTube, X. Besides social media accounts, MDUK has populated their site with Join our myasthenia gravis support group, Sign In, Sign In, England Rare Diseases Action Plan 2026: main report, Find out how you can get involved with Game On, Disability Pride Month, ‘Hiking for Hope’: climbing Snowdon in memory of my brother, What I have lost and gained living with Duchenne muscular dystrophy, "Hydrotherapy has helped my condition so much – now I’m helping others access it", Apply for London Marathon Assisted Wheelchair entry, Our work with partners to speed up the introduction of newborn screening for Spinal Muscular Atrophy - Muscular Dystrophy UK, Our £1 million investment to transform clinical trials for Charcot-Marie-Tooth disease, “We’re a close family and this is my way of showing support”, “It’s our happy place but also where we’ve seen Bertie’s muscular dystrophy play out” - Muscular Dystrophy UK, “My new wheelchair means I can join in with my school friends.” - Muscular Dystrophy UK, How we’re supporting the future of research into muscle wasting conditions - Muscular Dystrophy UK, “I have a greater perspective on life thanks to being Frankie’s Dad” - Muscular Dystrophy UK, PhD student living with LGMD to play key race starter role in the Bidwells Oxford 10k - Muscular Dystrophy UK, Find out more about newborn screening for SMA, Local Muscle Groups - Muscular Dystrophy UK, Sign our petition for a PIP system that treats people with dignity, www.musculardystrophyuk.org, PIP helps me stay independent – but the system needs to change - Muscular Dystrophy UK, www.musculardystrophyuk.org, “Every step is in memory of those we’ve lost”: Krishan's story, https://www.musculardystrophyuk.org/news/2023-2024-impact-report-muscle-wasting-community-achievements/, “How my diagnosis allowed me to rediscover rugby – in a wheelchair!” - Muscular Dystrophy UK, l.facebook.com, "I had to wait 10 years to be diagnosed with FSHD" - read Zoe's story, Young persons WhatsApp group (14-17) - Muscular Dystrophy UK, Our view on the assisted dying bill, https://www.musculardystrophyuk.org/about-us/stories/detail/timely-diagnosis-access-to-healthcare/, “I can brush my own teeth again thanks to mobile arm supports”, BBC Two - RHS Chelsea Flower Show - The People's Choice Award at RHS Chelsea Flower Show 2024, Gerry's story - living with myasthenia gravis, Ten new treatments in ten years - how much has changed in the last decade, SMA newborn screening debate - write to your MP, Housing equipment grant - find out more, “I like helping people, I want to give something back” - Kathryn's story, Read Lorna and Ed's story for Carers Week, Sign the joint petition to fix NHS continuing healthcare support, How we're supporting the next generation of researchers 🔬, Translarna not accepted for NHS use in Scotland - read more, Read about Becky and Toby's myotonic dystrophy diagnosis, Get involved with our volunteering, Sign up to take part in the London Marathon 2027 for us!, Assisted wheelchair entry | London Marathon 2027, Sign the petition to change the disability benefits system, Read about out volunteers' impact for our community 💪, Listen to the latest episode of the Muscles Matter Podcast, "Creativity is my escape": Read Joe's story for National Creativity Day, Lauren's 249,000 steps in May for her daughter - Muscular Dystrophy UK, Read about our Quality of Life research grants, A new home for our Chelsea Flower Show garden 🌳, How extreme weather affects people with muscle wasting conditions, Read Henry's story about FSHD diagnosis and starting Ultra Marathon, Write to your MP about the SMA newborn screening debate, Date announced for SMA newborn screening debate, Read amazing Maisie's story, Disabled man 'rotting' on a hospital ward - despite being told he is fit to go home - BBC News, Can what we eat help with muscle wasting conditions?, Read about Max's dad's 100km fundraising journey, Using a ventilator mask with facial recognition, Read Becca's story about her SMA treatment, Two new SMA treatments approved for use in England, New research to spot mental health impacts of DMD, Read about Rachel's work for International Nurses' Day, What the 2026 UK election results mean for our community, Read about Givinostat being approved for DMD in England, Read Liz and Chris' story, Sign up for Kiltwalk!, Apply for a specialised wheelchair grant, Read Susan's story about being a manifesting DMD carrier, Listen to the latest episode of the Muscles Matter podcast, Explore the Muscular Dystrophy UK online shop!, Read about the new Right to Try benefit rules, Myasthenia gravis treatment approved for NHS use in England - Muscular Dystrophy UK, Read Zoe's story about living with limb girdle muscular dystrophy, Sign up for the London Marathon 2027, Professor Muntoni wins prestigious award for Duchenne research, Our guide to the Scottish Parliament election 2026, Read Jono's story about self-propeling the London Marathon, 🏴 2026 Senedd election: What’s changing and why it matters, Read about our Stronger Together Awards winners 🏆, Share your views on Personal Independence Payments (PIP), Join our myasthenia gravis support group, Read Kiera's story of her first London Marathon in a wheelchair, Read more about Pompe Disease and research into new treatments, Running the London Marathon with FSHD - Oliver's story, Read Dani's experience of having a sibling with Duchenne, Emma's story about losing her Continuing Healthcare support, Read Bernie and Amanda's stories living with myasthenia gravis, Read about MAGIC's research into gene therapies, Read the new report on improving rare disease treatment access, Katrina's story - becoming a vet despite Bethlem myopathy, Read Becky's story - running the London marathon for her mum, Meet the man behind the Running Phone Box - Muscular Dystrophy UK, Read about our community's experiences with Access to Work, Listen to the latest muscles matter podcast about women's healthcare, Family living with FSHD will start our Oxford 10k - read more, Read Olivia's story about caring for her dad, How Sophie became Boccia number one aged 18, Scotland begins testing newborn babies for SMA, Roche ends trials of treatment for SMA and FSHD, Read Sophie's story about living with LGMD, Find out more about Jack's book 'I’m on a Journey to See You, Sam', Research update: strength training and myotonic dystrophy, Read Nick's story about creativity and living with Becker MD, Update on assessment of givinostat for NHS use in England, Sign up for Pedal Paddle Peak 2026 - Lake District, Read Becky's story about her myotonic dystrophy diagnosis, Walking 5,000 miles for Jack - Read Jack and Stephen's story, Get support if you're a young carer, Sign up to our Myasthenia Gravis support group, Another myasthenia gravis treatment rejected for NHS use in the UK - Muscular Dystrophy UK, Women’s Health in Focus: spotlight on women's issues, New digital tool to spot DMD features earlier, Read Louise's story about her partner's Becker diagnosis, Sign the petition to add SMA to newborn screening, Use your passion for gaming to fundraise for MDUK, Find out more about Pedal Paddle Peak Lake District ⛰️, Listen to the latest episode of our Muscles Matter Podcast 🎙️, Read Genetic Alliance UK's report on rare disease healthcare, Read about Paul's 54 mile fundraising challenge!, Read Jan's story about her granddaughter Evie, Jesy Nelson's petition to introduce newborn screening for SMA - Muscular Dystrophy UK, Meet our new trustees - Muscular Dystrophy UK, Read Liz's Pedal Paddle Peak story and sign up for this year's event!, Sign the petition to add SMA to newborn screening, Sign up for our North West Big Weekend 2026!, Read about Isobel's research into treatments for BMD, Read Roxanne's story about supporting her son with Duchenne and autism, Book your place at Game On 101!, Access peer support - Muscular Dystrophy UK, Read Ann's story about Hollie's SMA diagnosis and gene therapy, Read our CEO Andy's reflections on his first year at MDUK, New e-learning hub for Allied Health Professionals - Muscular Dystrophy UK, George's Journey - raising £250,000 for Duchenne research, Appeal success: myasthenia gravis treatment zilucoplan reconsidered for NHS use, Living with fatigue: voices from the muscle wasting community, Vote for 'A world without limits' in the Smiley Charity Film Awards, In memory of Charles Scott - Muscular Dystrophy UK, Sign up to our Myasthenia Gravis support group, Sign up to an Information Day in York, Birmingham or Scotland, "We thought our son just had dyspraxia - we never expected he had Duchenne" - Muscular Dystrophy UK, Join our siblings virtual therapeutic support group, Join our lay research panel!, Runner crosses the finish line of all six-star major marathons - Muscular Dystrophy UK, What would it cost to add SMA to newborn screening?, Duchenne and Bone Health: updated guidance for adults - Muscular Dystrophy UK, It's normal to be different: rolling through life with muscular dystrophy - Muscular Dystrophy UK, Share your story, Stay connected with our community, SMA explained: Reflecting on Jesy Nelson's news - Muscular Dystrophy UK, Listen to our December podcast here, Visit the MDUK shop, Double your donation here, Council, Committee, and Peer Support Volunteering, Read about Alex and Declan #GriefAwarenessWeek, Read our latest opinion blog, Read our summary of the Autumn Budget announcement, Learn more about the Everyday Stories study, Sign up to Kiltwalk 2026, Spirit of Christmas tickets, Read Olivia's story, Read Nancy's story #CarersRightsDay, Read Ian's story #InternationalMensDay, Learn more about our research, Give the gift of hope, Read our impact report, Learn more about our Trustees, Read about 'Max Matters', September Muscles Matter podcast, Register for our Jurassic Coast PPP, A Statement from NorthStar on Givinostat - Muscular Dystrophy UK, How many people are living with muscle wasting conditions in the UK?, View our upcoming information days, Register for PPP Lake District 2026!, "I used to believe my worth was tied to what I could do physically.", Read Ryan's story #BeckerAwarenessWeek, Tell us your story, Learn more about Charlotte & Tom's story, Read Chris Hooper's story, Nominations open - Stronger Together Awards, AI - helping doctors diagnose muscle wasting conditions faster, “I didn’t know I could do rock climbing with my FSHD. Now I’m training for the Paralympics.”, Our bold new ten-year strategy, Our myotonic dystrophy research, BGC Charity, “FSHD hasn’t stopped me working as a paramedic.”, Read Alfie's story, Read more about Stephanie's journey, Contact our peer support team, The effects of climate change on our community, He lives with daily pain and yet continues to show strength. I’m doing this for him, Sign up to our Congenital Myotonic Dystrophy webinar, Read about latest research into exercise, Find out more about CrotFest, Apply for a Joseph Patrick Trust (JPT) grant, Apply for our Vice Chair vacancy, Apply for our Trustee vacancy, Cycling 100km to kickstart fundraising for ‘Declan’s Muscle Mission’, Introduction of newborn screening for SMA, Read our blog on the givinostat decision, Understanding research, Take the TK2d Experience Survey, London to Paris – the hard way! Arch 2 Arc triathlon in support of friend’s son, My journey as a disabled entrepreneur - not the road most travelled, but one that’s mine, Muscular Dystrophy UK podcast: Muscles Matter - Muscular Dystrophy UK, ‘I couldn’t even run 100 metres at school, now I’m running 5ks — here’s what I’ve learnt.”, Ollie's Marathon Challenge, “As parents you can feel pretty helpless, so we’re doing this for Lance” - Muscular Dystrophy UK, We’re calling on the UK Government to tackle the challenges faced by people with muscle wasting and weakening conditions in its upcoming 10 Year Health Plan - Muscular Dystrophy UK, Support and information - Muscular Dystrophy UK, Second treatment for myasthenia gravis not approved for NHS use in England - Muscular Dystrophy UK, Triple Challenge: Pedal Paddle Peak 2025 – Yr Wyddfa (Snowdon) - Muscular Dystrophy UK, Climbing the Three Peaks in support of my son - Muscular Dystrophy UK, “My two daughters and I all have FSHD, but we have very different symptoms.” - Muscular Dystrophy UK, www.musculardystrophyuk.org, Supporting mental wellbeing for children - Muscular Dystrophy UK, Add your name 📢, Treatment for myasthenia gravis not approved for NHS use in England - Muscular Dystrophy UK, Volunteer Vacancies - Muscular Dystrophy UK, Local Muscle Groups - Muscular Dystrophy UK, Muscular Dystrophy UK podcast: Muscles Matter - Muscular Dystrophy UK, Givinostat access: progress made and the work still to do - Muscular Dystrophy UK, "Beyond the physical: navigating the mental health challenges of muscle wasting conditions" - Muscular Dystrophy UK, “His new all-terrain wheelchair has given our son his smile back.” - Muscular Dystrophy UK, A potential treatment for Pompe disease shows future promise - Muscular Dystrophy UK, Inclusive beach day - Muscular Dystrophy UK, New partnership blooms with Blue Diamond Garden Centres - Muscular Dystrophy UK, Givinostat – our role in supporting access to new treatments - Muscular Dystrophy UK, “My dream of being a professional footballer was crushed by my diagnosis – here’s how I found a new purpose.” - Muscular Dystrophy UK, “Finding creative adaptions has allowed me to juggle being a mum and running my own business.” - Muscular Dystrophy UK, “Plenty of people don’t breathe in the conventional way with modern ventilation”– my research projects as someone with a muscle wasting condition - Muscular Dystrophy UK, “My son’s biggest wish is for ‘a new medicine because then he might be quicker on his feet.’ It breaks my heart he’s being denied that chance” - waiting for givinostat - Muscular Dystrophy UK, PhD student living with LGMD to play key race starter role in the Bidwells Oxford 10k - Muscular Dystrophy UK, “We want to give something back”: siblings run Half Marathon in support of mum - Muscular Dystrophy UK, The things people don’t see: the everyday challenges of living with a muscle wasting condition - Muscular Dystrophy UK, In conversation: Director Benjamin Ree on The Remarkable Life of Ibelin, TCS London Marathon 2026 - Muscular Dystrophy UK, Meet the man behind the Running Phone Box - Muscular Dystrophy UK, From putting out fires to putting golf balls at an elite level: Jason’s journey into the world of golf - Muscular Dystrophy UK, www.musculardystrophyuk.org, Bidwells Oxford 10K 2025 (Sold out) - Muscular Dystrophy UK, "I've written the book I wish I'd been able to read growing up." - Muscular Dystrophy UK, Leave a gift in your Will - Muscular Dystrophy UK, From cake sale to abseil: fundraising in support of my grandson - Muscular Dystrophy UK, Episode 1 - Top daily challenges of living with a muscle wasting condition, Proposed welfare reforms and benefits cuts: what do we know about how this will affect people with muscle wasting and weakening conditions? - Muscular Dystrophy UK, Lifechanging grants for children – our new partnership with Whizz Kidz - Muscular Dystrophy UK, The cost of cuts to disability benefits: Our open letter to the Chancellor | Disability charity Scope UK, President’s Awards celebrate outstanding achievements - Muscular Dystrophy UK, “Inspired by his courage”: Running the London Marathon in memory of my brother - Muscular Dystrophy UK, Buy The Universe in My Wardrobe, Triple Challenge: Pedal Paddle Peak 2025 – Yr Wyddfa (Snowdon) - Muscular Dystrophy UK, Support and information - Muscular Dystrophy UK, Virtual therapeutic support groups - Muscular Dystrophy UK, Alert card order form - Muscular Dystrophy UK, “Having a disability can be isolating - I’m grateful I’ve found the South Asian Neuromuscular Community group.” - Muscular Dystrophy UK, Dating with a disability - Muscular Dystrophy UK, Information days - Muscular Dystrophy UK, Young Adult Catch Up - Muscular Dystrophy UK, “I’ve been a single mum for 40 years and have three children, two with Duchenne” – here’s what I wish I’d known. - Muscular Dystrophy UK, “We can feel January blues for the whole of winter!” - Muscular Dystrophy UK, NICE does not recommend NHS use of efgartigimod for treating generalised myasthenia gravis - Muscular Dystrophy UK, ‘Ramaganza’ online gaming marathon in memory of friend’s daughter - Muscular Dystrophy UK, Kilimanjaro Trek 2025 - Muscular Dystrophy UK, Northern Ireland Disability Sports Event - Muscular Dystrophy UK, Employability service - Muscular Dystrophy UK, Being a Muscle Group chair has allowed me to form new friendships - Muscular Dystrophy UK, New drug for Duchenne muscular dystrophy to be made available in Scotland - Muscular Dystrophy UK, Muscle Groups dates announced - Muscular Dystrophy UK, “Vamorolone helped my son maintain his independence” - Muscular Dystrophy UK, NICE recommends new drug for Duchenne muscular dystrophy to be made available in England - Muscular Dystrophy UK, Double Your Donation - Muscular Dystrophy UK, Support with bereavement, grief, and loss - Muscular Dystrophy UK, “My care has been cut by nearly half – I can hardly leave the house now” - Muscular Dystrophy UK, “My biggest struggle is how isolated that I feel” - Muscular Dystrophy UK, Changes to disabled employment rights across the years - Muscular Dystrophy UK, Missing people. Missing support. - Muscular Dystrophy UK, Using state-of-the-art genetic sequencing techniques to find genes that cause limb-girdle muscular dystrophies - Muscular Dystrophy UK, “I put extra blankets on because we can’t afford the heating – but it means I can’t move” - Muscular Dystrophy UK, Support and information - Muscular Dystrophy UK, Christmas Appeal - Muscular Dystrophy UK, Our President's Awards - Muscular Dystrophy UK, “My husband and I lost a lot of our benefits because we chose to get married and live together” - Muscular Dystrophy UK, Christmas Raffle - Muscular Dystrophy UK, “It took five years for my son to get diagnosed with Ullrich” - Muscular Dystrophy UK, Kiltwalk Series 2025 - Muscular Dystrophy UK, Running a half marathon to support my brother - Muscular Dystrophy UK, Research Archive - Muscular Dystrophy UK, Join us at Scottish Parliament - Muscular Dystrophy UK, Meet our new trustee, Chloe: “I welcome the opportunity to raise awareness and help find solutions” - Muscular Dystrophy UK, Running 53 miles in support of my brother - Muscular Dystrophy UK, Oxford octogenarian walks 80 miles in 80 hours to mark 80th birthday - Muscular Dystrophy UK, “Being diagnosed with CMT as a teenager was difficult to cope with.” - Muscular Dystrophy UK, Checking your chest when you struggle to ‘CoppaFeel!’ - Muscular Dystrophy UK, The Remarkable Life of Ibelin - Muscular Dystrophy UK, Reflections on the 2023-2024 impact report, CeX raises £200,000 through donations and customer trade-in scheme - Muscular Dystrophy UK, Running in memory of my wife and to help others - Muscular Dystrophy UK, Developing a mouse model and treatment for SORD neuropathy - Muscular Dystrophy UK, “Nobody warned me that menopause could make my condition deteriorate.” - Muscular Dystrophy UK, L-CMD Virtual Information Seminar - Muscular Dystrophy UK, Our 2025 research grant round is now open - Muscular Dystrophy UK, Young Adult Monthly Catch Ups: With Becca (Our Stories Officer) - Muscular Dystrophy UK, “Fundraising for research is important to me”: why I did a skydive for my 75th birthday - Muscular Dystrophy UK, Climbing Mount Kilimanjaro for Frankie - Muscular Dystrophy UK, Support groups - Muscular Dystrophy UK, A challenge for our boys: Couple take on Pedal Paddle Peak for sons living with Becker muscular dystrophy - Muscular Dystrophy UK, Virtual therapeutic support groups - Muscular Dystrophy UK, Virtual Information Seminar: Becker Muscular Dystrophy - Muscular Dystrophy UK, Local Muscle Groups - Muscular Dystrophy UK, “We went big for Bake a Difference” - Muscular Dystrophy UK, First newborns join screening for more than 200 rare diseases, “I hope that by pushing myself, I will inspire others” - Muscular Dystrophy UK, Comedy night with Jon Richardson and friends - Muscular Dystrophy UK, Community Research Hub - Muscular Dystrophy UK, “The charity’s employability helpline has massively improved my confidence” - Muscular Dystrophy UK, Developing a new gene therapy for periodic paralysis - Muscular Dystrophy UK, Virtual therapeutic support groups - Muscular Dystrophy UK, "I am following my dream career" - Bidwells 10k Cambridge race starter story - Muscular Dystrophy UK, “Growing the OPMD community has helped me with my own condition progression” – celebrating OPMD awareness day - Muscular Dystrophy UK, Pedal Paddle Peak 2025 – Yr Wyddfa (Snowdon) - Muscular Dystrophy UK, Dietary supplements as a potential new treatment for mitochondrial myopathies - Muscular Dystrophy UK, Developing a gene therapy for desminopathy - Muscular Dystrophy UK, Content Creator - Muscular Dystrophy UK, “CrossFit has helped us with our conditions – now we’re competing in the world championship” - Muscular Dystrophy UK, Understanding the molecular processes that cause the progression of FSHD - Muscular Dystrophy UK, Leave a gift in your will - Muscular Dystrophy UK, ‘Best in Show’ garden relocating to Glasgow after RHS Chelsea Flower Show - Muscular Dystrophy UK, Improving accessibility of bone density scanning for wheelchair users living with muscle wasting conditions - Muscular Dystrophy UK, Improving accessibility of bone density scanning for wheelchair users living with muscle wasting conditions - Muscular Dystrophy UK, Disappointing results from phase 3 FSHD clinical trial - Muscular Dystrophy UK, Take our financial security survey, Understanding how Duchene muscular dystrophy affects brain function - Muscular Dystrophy UK, Celebrating 20 years: NorthStar a ‘shining light’ for people living with Duchenne muscular dystrophy - Muscular Dystrophy UK, Developing a gene editing technique as a potential treatment for Duchenne muscular dystrophy - Muscular Dystrophy UK, What is muscular dystrophy? - Muscular Dystrophy UK, AI and MRI: improving the diagnosis of people with muscle wasting conditions - Muscular Dystrophy UK, “We need to normalise disabled people having children” - Muscular Dystrophy UK, We’re investing £1.7m into new research - Muscular Dystrophy UK, Competing in the Paralympics with muscular dystrophy - Muscular Dystrophy UK, Walking for Holly: a family Kiltwalk challenge - Muscular Dystrophy UK, Research Archive - Muscular Dystrophy UK, “I haven’t seen enough barristers who look like me – I’m changing that for others.” - Muscular Dystrophy UK, Andy Fletcher appointed as our new Chief Executive - Muscular Dystrophy UK, Online Sim Racing fundraiser in memory of dad - Muscular Dystrophy UK, Our research impact - Muscular Dystrophy UK, Flying high with muscular dystrophy - Muscular Dystrophy UK, Virtual therapeutic support groups - Muscular Dystrophy UK, Family and friends Zip Slide the Clyde to raise awareness and funds - Muscular Dystrophy UK, “Everyone had given up on my granddaughter – until we found Muscular Dystrophy UK and the South East Wales Neuromuscular team” - Muscular Dystrophy UK, “My husband used my condition against me and would push me over” – Getting out of my abusive relationship - Muscular Dystrophy UK, Community Research Hub - Muscular Dystrophy UK, Open grant calls - Muscular Dystrophy UK, “My new wheelchair means I can cook breakfast for my daughter” - Muscular Dystrophy UK, ‘I’ve achieved my dream of becoming a vet despite having Bethlem myopathy” - Muscular Dystrophy UK, Fighting for James, Joshua and Myles: Mum takes on Pedal Paddle Peak challenge for sons - Muscular Dystrophy UK, Using MRI to tell dysferlinopathy apart from other genetic muscle wasting conditions - Muscular Dystrophy UK, Calling for more fully accessible toilets - Muscular Dystrophy UK, “It took me thirty years to get diagnosed with myotubular myopathy.” - Muscular Dystrophy UK, ‘I’ve cycled halfway round the world with FSHD’ - Muscular Dystrophy UK, What should the new UK Government prioritise in its first 100 days to support people living with muscle wasting and weakening conditions?, My life with Ullrich congenital muscular dystrophy - Muscular Dystrophy UK, Pedal Paddle Peak 2025 - The Lake District - Muscular Dystrophy UK, “I’d been looking for a fundraiser for my son… When I heard about Game On it was perfect!” - Muscular Dystrophy UK, Friends and colleagues take on challenge to support ‘A Wish for Eben’ - Muscular Dystrophy UK, Community Research Hub - Muscular Dystrophy UK, General Election 2024 - Muscular Dystrophy UK, NICE publishes draft guidance on zilucoplan for myasthenia gravis treatment - Muscular Dystrophy UK, Government planning changes to disability benefit system - Muscular Dystrophy UK, Survey on the UK Government's proposed reforms of Personal Independence Payment, Virtual information seminar: nemaline myopathy - Muscular Dystrophy UK, Siblings take on Kids Triathlon in support of cousin living with muscular dystrophy - Muscular Dystrophy UK, We’re calling for the next Government to increase knowledge of muscle wasting and weakening conditions among non-neuromuscular specialist healthcare professionals - Muscular Dystrophy UK, Understanding how symptoms of nemaline myopathies change over time - Muscular Dystrophy UK, Webinar: nemaline myopathy - Muscular Dystrophy UK, TCS London Marathon 2025 - Muscular Dystrophy UK, ‘Christopher’s Champions’: Pedal Paddle Peak challenge in memory of son and brother - Muscular Dystrophy UK, Researchers test old drugs for potential treatment in spinal muscular atrophy (SMA) - Muscular Dystrophy UK, “Applying for housing adaptions is a minefield” - Muscular Dystrophy UK, We’re calling on the next Government to maintain the UK’s position as a world leading centre for research excellence. - Muscular Dystrophy UK, Information Day Community opinion survey, Young Adult Monthly Catch Ups: Travel and Holidays - Muscular Dystrophy UK, Adversity > Aspirations > Adapting (an alternate Father’s Day Guide) - Muscular Dystrophy UK, Putting carers on the map - Muscular Dystrophy UK, Finding and enjoying a fundraising project - Muscular Dystrophy UK, “I had to work through 11 years of repressed grief when I was finally diagnosed.” - Muscular Dystrophy UK, Guinness World Record title for charity cycling challenge - Muscular Dystrophy UK, We’re calling for people living with a muscle wasting and weakening condition to get a timely diagnosis, and the earliest access to the right treatment, care and support - Muscular Dystrophy UK, “I worked as a carer while studying – it was the most rewarding job I’d ever had” - Muscular Dystrophy UK, Virtual information seminar: Facioscapulohumeral Muscular Dystrophy (FSHD) - Muscular Dystrophy UK, We’re calling for people living with a muscle wasting and weakening condition to be able to feel more financially secure - Muscular Dystrophy UK, “I use my life experiences to support others in the community” – being a Peer Support Volunteer - Muscular Dystrophy UK, “My family have been fundraising for Muscular Dystrophy UK for three generations” - Muscular Dystrophy UK, Bringing people together as a Muscle Group chair - Muscular Dystrophy UK, Volunteers’ Week - celebrating our volunteers - Muscular Dystrophy UK, 2024 virtual information seminar on Duchenne Muscular Dystrophy (Paediatrics) - Muscular Dystrophy UK, “Gaming is my freedom and escape” - Muscular Dystrophy UK, Preliminary results of the RACER53 Phase 3 study for boys with Duchenne muscular dystrophy - Muscular Dystrophy UK, Finding strength in gratitude and beauty around you – a book of joy - Muscular Dystrophy UK, Taking part in a clinical trial and finding comfort in my music - Muscular Dystrophy UK, Benefits of art therapy for children with muscle wasting conditions - Muscular Dystrophy UK, Stay connected with our community - Muscular Dystrophy UK, ‘Best in Show’ garden relocating to Glasgow after RHS Chelsea Flower Show - Muscular Dystrophy UK, Raising awareness of muscle wasting conditions amongst health professionals - Muscular Dystrophy UK, Enter to win a garden consultation with Ula Maria, Meet researcher Dr William Duddy: ‘Personal experience helped shape my career’ - Muscular Dystrophy UK, “My flight home from a holiday has left me traumatised.” - Muscular Dystrophy UK, Enjoying nature as a disabled family - Muscular Dystrophy UK, The benefits of forest bathing - Muscular Dystrophy UK, Lifechanging grants making a difference | Muscular Dystrophy UK, “It’s an honour to provide families with support” – a nurse’s career journey | Muscular Dystrophy UK, Myology 2024 Paris conference update | Muscular Dystrophy UK, Long-standing volunteers to play key ‘race starter’ role in sell-out Bidwells Oxford 10k | Muscular Dystrophy UK, How you’re shaping our work | Muscular Dystrophy UK, ‘I never felt more alone than during my diagnosis’ – the story that inspired our Chelsea Flower Show Garden | Muscular Dystrophy UK, Shop the Forest Bathing Garden collection, 17th UK Neuromuscular Translational Research Conference update | Muscular Dystrophy UK, All Events | Muscular Dystrophy UK, RHS Chelsea Flower Show 2024: Inside the Forest Bathing Garden for Muscular Dystrophy UK, All Events | Muscular Dystrophy UK, ‘I never felt more alone than during my diagnosis’ – the story that inspired our Chelsea Flower Show Garden | Muscular Dystrophy UK, Virtual therapeutic support groups | Muscular Dystrophy UK, 'Anxiety controlled my teenage years' | Muscular Dystrophy UK, Help GPs to learn more about muscle wasting and weakening conditions - | Muscular Dystrophy UK, Open Gardens 2024 | Muscular Dystrophy UK, I want to collect! | Muscular Dystrophy UK, Comedy night with Jon Richardson and friends | Muscular Dystrophy UK, Coming together as a community: celebrating our recent Information Days | Muscular Dystrophy UK, ‘Accessible technology: staying independent and connected’ | Muscular Dystrophy UK, Meet our RHS Chelsea Flower Show garden designer: Ula Maria | Muscular Dystrophy UK, New research centre will unlock tests and treatments for people living with rare mitochondrial diseases | Muscular Dystrophy UK, Chief Executive Catherine Woodhead to leave Muscular Dystrophy UK | Muscular Dystrophy UK, We’ve been awarded a quality mark for our health and care information | Muscular Dystrophy UK, TCS London Marathon 2025 | Muscular Dystrophy UK, Good luck to all our London Marathon runners | Muscular Dystrophy UK, Survey findings from ‘What do you wear in your wheelchair?’ | Muscular Dystrophy UK, Adventure is out there: Martin's accessible outdoor spaces | Muscular Dystrophy UK, Turning a diagnosis into a purpose: John Foxwell | Muscular Dystrophy UK, Charcot-Marie Tooth runs in my family so I’m running the London marathon, Designing funky products for the disabled community, Open Gardens 2024 | Muscular Dystrophy UK, TCS London Marathon 2025 | Muscular Dystrophy UK, Accessing sexual healthcare as a disabled woman: Lauren and Rebecca’s story, The Continuing Healthcare process needs to be appropriate to progressive degenerative conditions | Muscular Dystrophy UK, Adult’s WhatsApp Group (30+) | Muscular Dystrophy UK, Gardening advice from Ula Maria: Our Forest Bathing RHS Chelsea Flower Show garden designer | Muscular Dystrophy UK, Helping us understand congenital myopathies: a new study of changes to an important muscle protein is providing insights | Muscular Dystrophy UK, NICE publishes draft guidance on vamorolone for treating Duchenne muscular dystrophy, Young Adult Monthly Catch Up: Mental Health and Wellbeing Support | Muscular Dystrophy UK, Free Wills service | Muscular Dystrophy UK, Wales Information Day (Cardiff)/ Diwrnod Gwybodaeth Cymru (Caerdydd) | Muscular Dystrophy UK, Approval of Duvyzat (givinostat) for Duchenne muscular dystrophy in the USA, ADHD and muscular dystrophy means your brain and body are constantly fighting each other | Muscular Dystrophy UK, MDA clinical and scientific conference 2024: Andrea’s update, Virtual therapeutic support groups | Muscular Dystrophy UK, Open Gardens 2024 | Muscular Dystrophy UK, The role of periostin in duchenne muscular dystrophy, Virtual information seminar: Spinal muscular atrophy (SMA) Treatments | Muscular Dystrophy UK, All Events | Muscular Dystrophy UK, Being a mum is the most rewarding experience of my life | Muscular Dystrophy UK, Debbie's RHS Chelsea Flower Show Update | Muscular Dystrophy UK, What are the key takeaways from the Government’s Spring Budget? | Muscular Dystrophy UK, Overview of our successful Care Advisors Conference 2024 | Muscular Dystrophy UK, Making music and DJing with Duchenne muscular dystrophy, Muscular dystrophy hasn’t stopped me becoming a physiotherapist | Muscular Dystrophy UK, Supporting our community’s mental health with Louise Halling | Muscular Dystrophy UK, Tom's eight marathons | Muscular Dystrophy UK, Our helpline is here for you | Muscular Dystrophy UK, Taking on Mount Kilimanjaro in grandma’s memory | Muscular Dystrophy UK, Our President’s Awards | Muscular Dystrophy UK, Scottish Conference | Muscular Dystrophy UK, Turning a diagnosis into a purpose: John Foxwell | Muscular Dystrophy UK, Wales Information Day (Cardiff) | Muscular Dystrophy UK, Vote for us as People's Choice winner in the Smiley Charity Film Awards, Young adults monthly catch up: lived experience | Muscular Dystrophy UK, Great North Run 2024 | Muscular Dystrophy UK, Myasthenia Gravis virtual information seminar | Muscular Dystrophy UK, Recognising scientist Linda Popplewell on International Day of Women and Girls in Science | Muscular Dystrophy UK, Neuromuscular Pilates videos | Muscular Dystrophy UK, Government fails to act on their 2022 commitment to increase financial support through the Disabled Facilities Grant | Muscular Dystrophy UK, Go Bright - Go Bright | Muscular Dystrophy UK, Get in touch re Peer Support | Muscular Dystrophy UK, All Events | Muscular Dystrophy UK, Local Muscle Groups | Muscular Dystrophy UK, Changing the landscape for clinical trials in the UK - celebrating the fifth anniversary of the MDUK Oxford Neuromuscular Centre | Muscular Dystrophy UK, England Information Day | Muscular Dystrophy UK, Parent's Support Group | Facebook, Recognising outstanding neuromuscular centres across the UK | Muscular Dystrophy UK, Myasthenia Gravis Support Group Registration, Events - Support for Young People | Muscular Dystrophy UK, Our helpline | Muscular Dystrophy UK, #Team Ella | Muscular Dystrophy UK, Research: Successful use of a self-management support programme in neuromuscular specialist centres | Muscular Dystrophy UK, Challenges | Muscular Dystrophy UK, Runs | Muscular Dystrophy UK, Find a volunteer role | Muscular Dystrophy UK, Muscle Groups, Virtual information seminars and Information Days, Peer support for you | Muscular Dystrophy UK, New research announced to understanding liver disease in people living with X-linked myotubular myopathy | Muscular Dystrophy UK, Vote for our film in the Smiley CFA Charity Film Awards, Your heart-warming words of wisdom on growing up with a muscle wasting condition | Muscular Dystrophy UK, Bereavement, Grief, and Loss - Bereavement, Grief, and Loss | Muscular Dystrophy UK, Organise a collection | Muscular Dystrophy UK, What are the key takeaways from the Government’s Autumn Statement? | Muscular Dystrophy UK, Skin cells' potential to form muscle cell models | Muscular Dystrophy UK, Disability History Month: your school experiences of Physical Education | Muscular Dystrophy UK, Reflection on the Annual Report | Muscular Dystrophy UK, Muscular Dystrophy UK online shop, Support for carers | Muscular Dystrophy UK, Take our Community Survey, Writing for wellbeing: how it works for me by Trish | Muscular Dystrophy UK, Trustees Week- New Trustees | Muscular Dystrophy UK, Joseph Patrick Trust Grants for Mobility Equipment | Muscular Dystrophy UK, We'll be at RHS Chelsea Flower Show 2024 | Muscular Dystrophy UK, Legacy Marketing Lead Job- Apply now! | Muscular Dystrophy UK, Research into X-linked spinal muscular atrophy | Muscular Dystrophy UK, Courageous Carmela is on a roll, What was it like growing up with a muscle wasting condition? Survey, Virtual information seminar: Pompe disease | Muscular Dystrophy UK, MDUK training for healthcare professionals, Update on the 28th annual World Muscle Society 2023 Congress | Muscular Dystrophy UK, Funding for new blood test developed for diagnosis of muscle wasting conditions at the University of Ulster - Muscular Dystrophy UK, Mental Health Factsheet︱Muscular Dystrophy UK, Inclusivity and advice for mental health | Muscular Dystrophy UK, 2024 research grant round now open for applications | Muscular Dystrophy UK, Northern Ireland Information Day – connecting our community | Muscular Dystrophy UK, Genome editing for Becker muscular dystrophy | Muscular Dystrophy UK, Jonathan's Story, Understanding the immune response in people with myasthenia gravis | Muscular Dystrophy UK, Virtual information seminar: Becker muscular dystrophy, Bake a Difference, Diagnosis of primary mitochondrial myopathies using MRI to measure how muscles use oxygen | Muscular Dystrophy UK, Fatigue Handbook, Using antibiotics to treat symptoms of myotonic dystrophy type 1, Understanding changes in mitochondria in muscles of people with myotonic dystrophy type 1, Celebrating our first ever accessible golf day, 2023 Research Grants, Northern Ireland Information Day, Virtual Therapeutic Support, London Marathon 2024, Tiffany's Story | Muscular Dystrophy UK, Sheila's Story | Muscular Dystrophy UK, Dean's Story | Muscular Dystrophy UK, Morvenna's Story | Muscular Dystrophy UK, Proposed ticket office closures, David's Golf Fundraiser | Muscular Dystrophy UK, Jack's Story | Muscular Dystrophy UK, Sign up to our newsletter, We’re proud to reveal our refreshed brand, Jessie and Hayley's Story | Muscular Dystrophy UK, Digital Marketing Officer (Organic social media and website) | Jobs, Pedal Paddle Peak 2024 - The Lake District | Muscular Dystrophy UK, Duchenne dating and sexuality | James' Story, Dawn and Andy's Story, Chris's Story, Celebrity Sports Quiz, BBC Drama Best Interests information and support | Muscular Dystrophy UK, Carmela's Wonder Wheels Cycling Challenge | Muscular Dystrophy UK, Recognising and supporting carers in the community, and the challenges they face | Muscular Dystrophy UK, ‘As a shy teenager, volunteering really pushed me out of my comfort zone – for the better’ | Muscular Dystrophy UK, Supporting someone living with myasthenia gravis – share your experience to further new treatment decisions | Muscular Dystrophy UK, Great North Run 2023 | Muscular Dystrophy UK, Daniel's story, My chat with Professor Volker Straub, Anne's story, Louise's experiences - Mental Health Awareness Week, Gemma's story, Meet the #TeamOrange Bidwells Oxford Town & Gown 10k runners, Sara's Story, Jed's Story, Kiana's Story, Experiences Survey, Gabby Logan's story, Good luck to all our MDUK marathon runners going the extra mile for people living with muscle-wasting conditions | Muscular Dystrophy UK, Josie's Story, The John Walton Muscular Dystrophy Research Centre | Muscular Dystrophy UK, Cost of living | Muscular Dystrophy UK, Jason's Story, Gitte's Story, Retired England rugby player Charlie Hodgson tackles the London Marathon | Muscular Dystrophy UK, RideLondon-Essex 100 - sign up now!, ”Typing up a storm – why we need better awareness of disabilities and adjustments in the workplace” | Muscular Dystrophy UK, Gem's Story, President's Awards: Tiffany Hesson, President's Awards: Emma-Jayne Ashley, President's Awards: Claire Boylan, President's Awards: Dr Vino Vivekanandam, President's Awards: The Chubb Family, President's Awards: Chloe Ball-Hopkins, President's Awards, Researching the cure and running for the cause: Dr Valeria Di Leo takes on the Great North Run, Leading property consultant Bidwells announced as headline partner for historic Town and Gown 10k series | Muscular Dystrophy UK, Great North Run 2023 | Muscular Dystrophy UK, We catch up with Tiffany Hesson about her personal commitment to championing diversity within the muscle-wasting community., Join #TeamOrange and skydive MDUK, NICE publishes final guidance recommending access to Duchenne muscular dystrophy treatment Translarna, Events, Website, Facebook, Twitter, Instagram, YouTube, Donate.
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