@edsawareness
We provide informative resources & education for patients, families & physicians
EDS is not all in the head! - EDSAwareness.com
EDS is not all in the head! - EDSAwareness.com
In my decades of working with people with EDS, the number one comment I get is, “my doctor will not treat me and says it is all in my head.”And lately, some physicians and psychiatrists suggest that people with EDS have lots of mental health conditions, which is harmful to the community. In the following […]
Interview with Donna Sullivan, TCAPP, about wrongful child abuse allegations and medically complex children - EDSAwareness.com
Interview with Donna Sullivan, TCAPP, about wrongful child abuse allegations and medically complex children - EDSAwareness.com
For our July newsletter, journalist Karina Sturm spoke with Donna Sullivan, board member of The Coalition Against Pediatric Pain (TCAPP). Sullivan lives with EDS and has several affected children as well. In this interview, she shares with Chronic Pain Partners her decade-long experience working with families accused of child abuse due to a medically […]
Para climber Anoushé Husain on "believing in the impossible", her cancer diagnosis, EDS journey, and the sports she loves - EDSAwareness.com
Para climber Anoushé Husain on "believing in the impossible", her cancer diagnosis, EDS journey, and the sports she loves - EDSAwareness.com
Archer Young about navigating health care as a trans man with EDS, transitioning, and studying with a disability - EDSAwareness.com
Archer Young about navigating health care as a trans man with EDS, transitioning, and studying with a disability - EDSAwareness.com
Kaleena Deshawn on challenges as a person of color with EDS, Fibromyalgia and ME/CFS - EDSAwareness.com
Kaleena Deshawn on challenges as a person of color with EDS, Fibromyalgia and ME/CFS - EDSAwareness.com
Jack Briar Pollock on challenges of being trans with EDS - EDSAwareness.com
Jack Briar Pollock on challenges of being trans with EDS - EDSAwareness.com
For our July newsletter, the Chronic Pain Partners media team interviewed a diverse group of people to highlight the diversity of our community and emphasize the challenges that arise when one belongs to more than one minority. In this interview, medical writer Sarah Cook, PA-C, speaks with Jack Briar Pollock, an EDS advocate and artist […]
EDSed, Episode 1: The Norris Lab
EDSed, Episode 1: The Norris Lab
EDSed Episode 1: The Norris Lab - EDSAwareness.com
EDSed Episode 1: The Norris Lab - EDSAwareness.com
Interview with Dr. Norris on finding the genetic cause(s) for hypermobile EDS and much more - EDSAwareness.com
Interview with Dr. Norris on finding the genetic cause(s) for hypermobile EDS and much more - EDSAwareness.com
Cassandra Campbell on finding acceptance as a person with EDS - EDSAwareness.com
Cassandra Campbell on finding acceptance as a person with EDS - EDSAwareness.com
For our August newsletter, the Chronic Pain Partners media team interviewed a group of people to highlight the diversity of our community and emphasize the challenges that arise when a person belongs to more than one minority. In this interview, writer Beth Miller speaks with Cassandra Campbell, a coach, author and EDS advocate. Campbell shares […]
EDSed
EDSed
The 12 Gifts of Blissmas: This Holiday Season's Gift Guide for the EDS Warrior - EDSAwareness.com
The 12 Gifts of Blissmas: This Holiday Season's Gift Guide for the EDS Warrior - EDSAwareness.com
Author Susan Jackson suggests the 12 best gift ideas for the holidays which may improve the life of your chronically ill loved one!
December 2022 EDS Newsletter & Updates
December 2022 EDS Newsletter & Updates
EDS Holiday Hacks: Twelve Tips for Setting Yourself Up for Success by Realigning Your Expectations - EDSAwareness.com
EDS Holiday Hacks: Twelve Tips for Setting Yourself Up for Success by Realigning Your Expectations - EDSAwareness.com
Christie Cox shares her twelve tips to cope with the holiday stress as a person with a chronic illness like Ehlers-Danlos syndrome.
Free Webinar: "Understanding EDS and managing it”
Free Webinar: "Understanding EDS and managing it”
The Sextacular EDS Zebra Group: An interview with Admin Mary Cordaro
The Sextacular EDS Zebra Group: An interview with Admin Mary Cordaro
[CW: The following article is for an adult audience due to its content and language. We are sharing challenges related to having sex and ways of overcoming those.] For our October newsletter, journalist Jackie Saa spoke with Mary Cordaro, admin of the “Sex-tacular EDS Zebras” group on Facebook. The idea behind the group was that […]
Where physical therapy ends and magic begins: Healy Physical Therapy and Sports Medicine
Where physical therapy ends and magic begins: Healy Physical Therapy and Sports Medicine
Free Webinar: “Physical Therapy Protocol for Ehlers-Danlos Syndrome” - Recording Available
Free Webinar: “Physical Therapy Protocol for Ehlers-Danlos Syndrome” - Recording Available
Watch the recording of this free webinar. When you purchase the book through the following link, $1.00 will support EDS Awareness programs.
Author Christie Cox about her new EDS book 'Holding It All Together When You're Hypermobile'
Author Christie Cox about her new EDS book 'Holding It All Together When You're Hypermobile'
For our Chronic Pain Partners newsletter, journalist Karina Sturm spoke with Christie Cox, fellow zebra and author of the new EDS book “Holding It All Together When You’re Hypermobile.” Cox shares her journey to getting diagnosed with EDS, what motivated her to write this book, and what the book is all about. [We will review […]
Explaining Disability - Part of What Makes Us Disabled
Explaining Disability - Part of What Makes Us Disabled
EDS & Caregiving: An interview with Alice Agyemang, professional full-time caregiver
EDS & Caregiving: An interview with Alice Agyemang, professional full-time caregiver
October’s Chronic Pain Partners Post is out!
October’s Chronic Pain Partners Post is out!
What is EDS (information for newly diagnosed people)
What is EDS (information for newly diagnosed people)
"Foot and Ankle Treatments for EDS"
"Foot and Ankle Treatments for EDS"
Suicide Prevention Month Q & A with Dr. Delaney and PA Sarah Cook about coping strategies and how to support people with chronic illnesses
Suicide Prevention Month Q & A with Dr. Delaney and PA Sarah Cook about coping strategies and how to support people with chronic illnesses
April Torres on her EDS journey, the mental toll it took on her, and her book ‘God is Hilarious: My Rescue Story’
April Torres on her EDS journey, the mental toll it took on her, and her book ‘God is Hilarious: My Rescue Story’
Book Review: “Fight + Flight” - The new middle-grade book featuring a character with EDS!
Book Review: “Fight + Flight” - The new middle-grade book featuring a character with EDS!
Free Webinar: “A Pain in the Hypermobile Neck”
Free Webinar: “A Pain in the Hypermobile Neck”
Guidelines for Starting a New Support group
Guidelines for Starting a New Support group
My Wife Had EDS and Did Not Know IT!
My Wife Had EDS and Did Not Know IT!
Chronic Pain Partners Donations
Chronic Pain Partners Donations
Spread the knowledge! EDS Awareness offers FREE Educational Sessions monthly! Check out one of our previous webinars with mast cell activation expert Dr. Afrin!
Spread the knowledge! EDS Awareness offers FREE Educational Sessions monthly! Check out one of our previous webinars with mast cell activation expert Dr. Afrin!
You can listen to the podcast here
You can listen to the podcast here
Sample for the EDS Awareness Materials that might be purchased or modified for use during EDS Awareness activities.
Sample for the EDS Awareness Materials that might be purchased or modified for use during EDS Awareness activities.
EDS Awareness Educational Programs and Newsletter
EDS Awareness Educational Programs and Newsletter
Sign up for the monthly EDS Newsletter (Chronic Pain Partners Post)
Sign up for the monthly EDS Newsletter (Chronic Pain Partners Post)
Review of Jeannie Di Bon’s Zebra Club by Karina Sturm
Review of Jeannie Di Bon’s Zebra Club by Karina Sturm
Watch We Are Visible Online | Vimeo On Demand
Vimeo
Watch We Are Visible Online | Vimeo On Demand
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