@vhlalliance
501c3 non-profit focused on supporting people affected by VHL disease.
VHL Spring Newsletter 2026
VHL Spring Newsletter 2026
Register For Family Weekend in Los Angeles | August 7-9, 2026
Register For Family Weekend in Los Angeles | August 7-9, 2026
Read Our 2025 Impact Report
Read Our 2025 Impact Report
Fill Out The VHL Europa Quality Of Life Survey
Fill Out The VHL Europa Quality Of Life Survey
Read Our Latest Blog Posts
Read Our Latest Blog Posts
Four Exciting Developments in Using Belzutifan to Treat VHL Patients 🔬
Four Exciting Developments in Using Belzutifan to Treat VHL Patients 🔬
At the VHL Alliance, we are committed to bringing you the latest developments in research and treatment options for Von Hippel-Lindau (VHL) disease. Managing VHL can be challenging, but recent...
Walk For VHL Awareness in May 👣
Walk For VHL Awareness in May 👣
Help the VHL Alliance raise <span tabindex="-1" contenteditable="false"><span data-widget="placeholder">$125,000</span></span> to support von Hippel-Lindau research & community support!<br /><br />Donate here:<br /><span tabindex="-1" contenteditable="false"><span data-widget="placeholder">https://vhl.rallybound.org</span></span>
Purchase VHL Alliance Merch 👕
Purchase VHL Alliance Merch 👕
Browse all products at VHL Alliance
Wellness Coaching Program | Register Here
Wellness Coaching Program | Register Here
VHLA’s Wellness Coaching program will give you the tools and techniques that will reduce stress, create ease, boost resilience and help increase the feeling of control.
Access VHL Resources
Access VHL Resources
Learn more about VHL Surveillance Guidelines, preparing for surgery, and access our library of Von Hippel-Lindau resources.
Register For Events
Register For Events
Find A Clinical Care Center
Find A Clinical Care Center
Get In Touch
Get In Touch
Support Our Mission
Support Our Mission
There are a variety of ways to support the VHL Alliance. Online donations, stock contributions, hosting a fundraiser, and more!
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