advocate|founder|chair
An XIAP & BMT survivor hoping to use my experiences to better the health system.
Stripes of Solidarity 🏳️🌈🦓
Stripes of Solidarity 🏳️🌈🦓
SOS Newsletter Signup
SOS Newsletter Signup
SOS Two Pager
PDF
·
Document
SOS Two Pager
Linkedin
Linkedin
Stripes of Solidarity (YouTube)
Stripes of Solidarity (YouTube)
Welcome to Stripes of Solidarity We’re an inclusive platform redefining what rare disease advocacy looks like—especially for those too often left out of the narrative. Founded by a Black queer rare disease survivor and community builder, SOS exists to uplift marginalized voices, spark systemic change, and build connection across the rare disease world and beyond. On this channel, you’ll find: • Powerful patient and caregiver stories • Real talks with advocates, clinicians, and community leaders • Highlights from our events, webinars, and campaigns • Content that celebrates intersectionality—race, gender, queerness, identity & illness • Actionable info to help you get involved and make a difference Whether you’re rare, love someone who is, or are just stepping into this space, you’re welcome here. Follow, share, and join the dazzle. Solidarity, one stripe at a time. 🦓✨ #StripesOfSolidarity #RareDisease #Queer #Advocacy #HealthEquity
Rare and Real Pod (YouTube)
Rare and Real Pod (YouTube)
Rare and Real (Spotify)
Podcast
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Podcast
Rare and Real (Spotify)
Podcast · Stripes of Solidarity · Rare & Real is a bold, unfiltered podcast where rare disease meets real life — and nothing’s off the table. Hosted by Nate Milam II and Carter Hemion, queer rare disease advocates, storytellers, and health equity champions, this show is built for the community and by the community. Whether you’re a patient, caregiver, provider, ally, or just trying to understand what it means to survive and show up at the margins — you’ll find yourself here. We talk about it all: sex and dating, mental health, grief, growing up rare, medical gaslighting, joy, transition care, and everything in between.
Rare and Real (Apple Podcasts)
Podcast
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Podcast
Rare and Real (Apple Podcasts)
Diagnostic Odyssey with Histiocytosis— Full Interview
Diagnostic Odyssey with Histiocytosis— Full Interview
Nate Milam II, Patient Advocate for the Histiocytosis Association, discusses his diagnostic odyssey with histiocytosis.Histiocytosis is a rare hematologic di...
Episode 68: Nate Milam - HLH — On One Condition
Episode 68: Nate Milam - HLH — On One Condition
13th Annual RareVoice Awards 2024
13th Annual RareVoice Awards 2024
2024 Histio HopeCast
2024 Histio HopeCast
Young Adult Rare Representative
Young Adult Rare Representative
Empowering Voices & Bridging Gaps
Empowering Voices & Bridging Gaps
The Histiocytosis Association, a global nonprofit organization committed to addressing the unique needs of those dealing with histiocytic disorders, has been at the forefront of driving change and support within the histiocytosis community for over 35 years. The Histiocytosis Association has a multi
Episode 060 – Navigating Histiocytosis from a Neuropsychological Perspective
Podcast
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Podcast
Episode 060 – Navigating Histiocytosis from a Neuropsychological Perspective
Episode 058 - Global Genes Conference: Showing Up and Making an Impact
Podcast
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Podcast
Episode 058 - Global Genes Conference: Showing Up and Making an Impact
RDLA Team
RDLA Team
Nate’s Fundraising Odyssey
Nate’s Fundraising Odyssey
A fundraising page for Nate Milam II
Episode 055 - Advocacy and Awareness - 2 Pillars of Finding a Cure
Podcast
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Podcast
Episode 055 - Advocacy and Awareness - 2 Pillars of Finding a Cure
Episode 041 - 3-Minute Thursday - Confidence in Patient Autonomy
Podcast
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Podcast
Episode 041 - 3-Minute Thursday - Confidence in Patient Autonomy
Beyond the Diagnosis · Episode
Histio Warrior - Honorary Team Captains
Histio Warrior - Honorary Team Captains
Episode 036 - 3-Minute Thursday - Pharmacogenetics
Podcast
·
Podcast
Episode 036 - 3-Minute Thursday - Pharmacogenetics
Histio Ambassadors | Histiocytosis Association
Histio Ambassadors | Histiocytosis Association
Episode 029 - 3-Minute Thursday - Ethnicity and Matching
Podcast
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Podcast
Episode 029 - 3-Minute Thursday - Ethnicity and Matching
Episode 014 - The Histiocytosis Association Scholarship Program (08:34)
Podcast
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Podcast
Episode 014 - The Histiocytosis Association Scholarship Program (08:34)
Pediatric Palliative Care | The Gift of Life
Pediatric Palliative Care | The Gift of Life
Was It Crohn’s Or Something Else?
Was It Crohn’s Or Something Else?
Maryland General Assembly- Budget Hearing (1:08:39)
Maryland General Assembly- Budget Hearing (1:08:39)
Seacrest Studios Grand Opening at Children's National Medical Center
Seacrest Studios Grand Opening at Children's National Medical Center
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