advocate|founder|chair
An XIAP & BMT survivor hoping to use my experiences to better the health system.
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advocate|founder|chair has been a member of Linktree for 3 years and joined in February 2023. Resources natemilam has populated their site with include: • Stripes of Solidarity 🏳️🌈🦓 • SOS Newsletter Signup • Linkedin • Stripes of Solidarity (YouTube) • Rare and Real Pod (YouTube) • Rare and Real (Spotify) • Rare and Real (Apple Podcasts) • Diagnostic Odyssey with Histiocytosis— Full Interview • Episode 68: Nate Milam - HLH — On One Condition • 13th Annual RareVoice Awards 2024 • 2024 Histio HopeCast • Young Adult Rare Representative • Empowering Voices & Bridging Gaps • Episode 060 – Navigating Histiocytosis from a Neuropsychological Perspective • Episode 058 - Global Genes Conference: Showing Up and Making an Impact • RDLA Team • Nate’s Fundraising Odyssey • Episode 055 - Advocacy and Awareness - 2 Pillars of Finding a Cure • Episode 041 - 3-Minute Thursday - Confidence in Patient Autonomy • Histio Warrior - Honorary Team Captains • Episode 036 - 3-Minute Thursday - Pharmacogenetics • Histio Ambassadors | Histiocytosis Association • Episode 029 - 3-Minute Thursday - Ethnicity and Matching • Episode 014 - The Histiocytosis Association Scholarship Program (08:34) • Pediatric Palliative Care | The Gift of Life • Was It Crohn’s Or Something Else? • Maryland General Assembly- Budget Hearing (1:08:39) • Seacrest Studios Grand Opening at Children's National Medical Center
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